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<h3>You won’t always be here. And deep down, you already know that.</h3>For decades, you’ve been the one holding it all together.Coordinating services.&nbsp; &nbsp; Managing medications. Advocating at every meeting, every appointment, every emergency.But your body is slowing down. Your energy is different.And the question starts to whisper louder:“What happens when I can’t keep doing this?”You’re not being dramatic. You’re being responsible. And the earlier you begin this process, the more control and peace of mind you’ll have.<figure id="figure-rnxz7dl8xamaze8v2l"><img id="rnxz7dl8xamaze8v2l" src="https://media.gettyimages.com/id/1164358693/photo/disabled-man-works-in-the-garden.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=SbNnluAwzANvTOyxOvXQ_hVUF4eg3Iz3cZo29z1zxqM=" alt="Disabled man works in the garden" title="Disabled man works in the garden" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: undefined undefined;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1164358693/photo/disabled-man-works-in-the-garden.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=SbNnluAwzANvTOyxOvXQ_hVUF4eg3Iz3cZo29z1zxqM=" data-mce-style="aspect-ratio: 16/9; object-position: undefined undefined;"></figure><h3>Why It’s So Hard to Plan for “After You”</h3>Here’s what I see aging parents struggle with over and over again:💔 It’s painful to imagine your child without you You’ve been their person. Letting go—even a little—feels terrifying. ❓ You’re not sure what’s even available Between Medicaid waivers, guardianship rules, and underfunded services, it’s hard to know what your options really are. 👪 There’s no clear successor Siblings might live far away. Other family members aren’t involved. And outside help feels risky without guidance. 🗂️ No one’s helping you make a plan You’re told to “get something in place,” but what does that mean? A binder? A will? A staff list? A housing program? All of it?<figure id="figure-b9f45y2bimaze9b8s"><img id="b9f45y2bimaze9b8s" src="https://media.gettyimages.com/id/1313401295/photo/adult-man-portrait-with-a-down-syndrome-photo-series.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=nK1MZn6rsYx47jpYxKhl7IgSRVSmwNWL0hk494dEprc=" alt="Adult Man Portrait with a Down Syndrome Photo Series" title="Adult Man Portrait with a Down Syndrome Photo Series" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1313401295/photo/adult-man-portrait-with-a-down-syndrome-photo-series.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=nK1MZn6rsYx47jpYxKhl7IgSRVSmwNWL0hk494dEprc=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>✅ What You Can Do Starting Now</h3>You don’t need the perfect plan. You just need the next right step.1. 🧾 Document what only you know Write down medical routines, agency contacts, staff instructions, communication styles, and what makes your child feel safe. Even 1–2 pages is better than nothing.2. 🧠 Understand what Medicaid waivers actually provide If you’re using a Kentucky waiver, get clear on the services offered—like Participant-Directed Services, respite, or Community Living Supports—and where the gaps will be when you're gone.3. 🧑‍🤝‍🧑 Identify a circle of support—even if it’s small Whether it’s a sibling, a cousin, a neighbor, or a paid staff person, you can start laying a foundation so that someone isn’t starting from scratch in an emergency.4. 📅 Start transition planning while you’re still able to lead it The best transitions happen when you’re there to guide them—before a crisis forces decisions.<figure id="figure-5t3teblbymaze9scx"><img id="5t3teblbymaze9scx" src="https://media.gettyimages.com/id/182507376/photo/mothers-love.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=MCzwWqsWLzMWEENBtNobhGlvukz4wu0hAM690gbP3sE=" alt="Mothers love" title="Mothers love" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/182507376/photo/mothers-love.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=MCzwWqsWLzMWEENBtNobhGlvukz4wu0hAM690gbP3sE=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Start Here — Before the Crisis Hits</h3>If this all feels too heavy to do alone, you don’t have to.I help aging parents:✅&nbsp;Build out a future care strategy that actually fits your child and your family✅&nbsp;Map out roles, supports, and services ✅&nbsp;Create documentation others can actually use Connect with trusted local providers and people &nbsp;I currently have a few strategy sessions available for parents navigating this exact transition.👉 <a data-mce-href="https://sharrisonconsulting.com/support-for/future-planning-disabled-adults-parents" href="https://sharrisonconsulting.com/support-for/future-planning-disabled-adults-parents" data-mce-selected="inline-boundary">Click here to schedule yours﻿</a>You’ve done the hardest work already.Let’s make sure that work lasts—even when you can’t be the one carrying it.<figure id="figure-8nx5qxzuwamazea5iu"><img id="8nx5qxzuwamazea5iu" src="https://media.gettyimages.com/id/2185442370/photo/caretaker-and-sister-taking-care-of-her-middle-aged-brother-who-also-suffers-from-autism.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=QMq4FYPzxX5lH8ANezVSq52nPq8VKzG7laIW4H9tF7o=" alt="Caretaker and sister taking care of her middle aged brother who also suffers from autism." title="Caretaker and sister taking care of her middle aged brother who also suffers from autism." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2185442370/photo/caretaker-and-sister-taking-care-of-her-middle-aged-brother-who-also-suffers-from-autism.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=QMq4FYPzxX5lH8ANezVSq52nPq8VKzG7laIW4H9tF7o=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure> <h3>Meet Samantha&nbsp;</h3>Samantha Harrison is a disability consultant with over 13 years of experience helping Kentucky families navigate Medicaid waivers, hire caregivers through Participant-Directed Services (PDS), and build care steams that actually work.She’s on a mission to help families who are being left to manage complex systems alone—facing long waitlists, confusing rules, and impossible decisions without enough support. And with new Medicaid cuts looming, the stakes have never been higher.Samantha offers hands-on, personalized support to help families get clear answers, take action, and create sustainable solutions—without getting lost in the red tape. If you’re ready for real help, you’re in the right place.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">Connect with Samantha&nbsp;</a><figure id="figure-qncyf4k8samay23i17"><img id="qncyf4k8samay23i17" src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure>

What Happens When You Can’t Be the Caregiver Anymore?

<h3>High school isn’t the finish line. It’s the start of an overwhelming new chapter for families of young adults with disabilities.</h3>You spend years fighting for IEPs, therapies, and transition plans. And then—just like that—graduation hits.Suddenly, there’s no classroom. No clear routine. No built-in supports. And you’re left asking:“Now what?”For many families, life after high school for a young adult with disabilities brings more questions than answers.Where will they go each day? What programs are available? Will they be stuck at home while peers move on?Let’s talk about what comes next—and how to build a life that actually works.<figure id="figure-rnxz7dl8xamaze8v2l"><img id="rnxz7dl8xamaze8v2l" src="https://media.gettyimages.com/id/1947153227/photo/portrait-of-a-happy-disabled-man-at-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=UJrfrHmrA439bzHI06KKsV51GP4amRoPLCCOSnpsmmQ=" alt="Portrait of a happy disabled man at home" title="Portrait of a happy disabled man at home" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1947153227/photo/portrait-of-a-happy-disabled-man-at-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=UJrfrHmrA439bzHI06KKsV51GP4amRoPLCCOSnpsmmQ=" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure><h3>What Happens to Too Many Young Adults After Graduation</h3>Without a clear plan, this is what I see over and over again:🛋️ They stay home all day — with no routine, no connection, and no growth💸 Families burn out fast — trying to juggle caregiving and full-time work🧩 Supports go underused — because no one explained how to access or combine them📉 Skills they built in school begin to fade — because there’s no consistent practiceIt doesn’t have to be this way. But the system doesn’t make it easy.<figure id="figure-b9f45y2bimaze9b8s"><img id="b9f45y2bimaze9b8s" src="https://media.gettyimages.com/id/2053448841/photo/disabled-man-happy-while-painting-on-canvas.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=zPw2wkFndEgixHi6rea8kHNqz-kIQsiHyFqd1C_ee6E=" alt="Disabled man happy while painting on canvas" title="Disabled man happy while painting on canvas" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2053448841/photo/disabled-man-happy-while-painting-on-canvas.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=zPw2wkFndEgixHi6rea8kHNqz-kIQsiHyFqd1C_ee6E=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>What You Can Do After High School Ends</h3>There’s no one-size-fits-all path—but there are options. Here’s where to begin:1. 🔍 Get clear on what’s available From waiver programs and adult day services to supported employment or college transition programs—Kentucky has options. But most families don’t hear about them until years too late.2. 📋 Start with your young adult’s vision, not just the system’s limitations Do they want to work? Be around people? Live more independently someday? You’re not just filling time—you’re building a life. Start from what matters most.3. 🧑‍🤝‍🧑 Consider Participant-Directed Services (PDS) If traditional day programs don’t fit, PDS might. It allows families to hire their own staff, build a schedule that works, and create opportunities around real goals—not cookie-cutter programs.4. 🧠 Think beyond 1 year at a time What you do today shapes what’s possible 5 years from now. That doesn’t mean rushing—but it does mean being intentional.<figure id="figure-5t3teblbymaze9scx"><img id="5t3teblbymaze9scx" src="https://media.gettyimages.com/id/1347212805/photo/young-man-with-down-syndrome-with-his-mentoring-friend-sitting-outdoors-in-cafe-using-laptop.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=7HToIxPcKmG6AYHKZ1jqsEu6JLlkLSE5zkqlUlrWQB4=" alt="Young man with Down syndrome with his mentoring friend sitting outdoors in cafe using laptop." title="Young man with Down syndrome with his mentoring friend sitting outdoors in cafe using laptop." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1347212805/photo/young-man-with-down-syndrome-with-his-mentoring-friend-sitting-outdoors-in-cafe-using-laptop.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=7HToIxPcKmG6AYHKZ1jqsEu6JLlkLSE5zkqlUlrWQB4=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>✅ Start Here — You Don’t Have to Navigate This Alone</h3>You don’t have to figure it all out today. But you can take the next step forward.I work with families to create customized post-graduation roadmaps that focus on:🎯 Meaningful daily routines💼 Opportunities for growth, work, and contribution🏡 Long-term care planning🧾 Getting the right services without getting lost in the system I have a few openings for free strategy sessions with families navigating this exact transition.👉<a data-mce-href="https://sharrisonconsulting.com/support-for/life-after-high-school" href="https://sharrisonconsulting.com/support-for/life-after-high-school"> Click here to schedule your session.</a><figure id="figure-fs2x2ov7xmazf24b5"><img id="fs2x2ov7xmazf24b5" src="https://media.gettyimages.com/id/1491249590/photo/two-friends-a-young-woman-and-man-with-down-syndrom-hiking-together-in-the-forest.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=s6vsqE2JVqBsv-bMhL-6BZLbDXynFcOY5ItuRDyrS1E=" alt="Two friends, a young woman and man with Down syndrom, hiking together in the forest" title="Two friends, a young woman and man with Down syndrom, hiking together in the forest" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1491249590/photo/two-friends-a-young-woman-and-man-with-down-syndrom-hiking-together-in-the-forest.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=s6vsqE2JVqBsv-bMhL-6BZLbDXynFcOY5ItuRDyrS1E=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Meet Samantha&nbsp;</h3>Samantha Harrison is a disability consultant with over 13 years of experience helping Kentucky families navigate Medicaid waivers, hire caregivers through Participant-Directed Services (PDS), and build care steams that actually work.She’s on a mission to help families who are being left to manage complex systems alone—facing long waitlists, confusing rules, and impossible decisions without enough support. And with new Medicaid cuts looming, the stakes have never been higher.Samantha offers hands-on, personalized support to help families get clear answers, take action, and create sustainable solutions—without getting lost in the red tape. If you’re ready for real help, you’re in the right place.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">Connect with Samantha&nbsp;</a><figure id="figure-qncyf4k8samay23i17"><img id="qncyf4k8samay23i17" src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure>

After Graduation: Building a Life That Works

<h3>Hiring people to help special needs adult, child, or sibling shouldn’t feel like shouting into the void.</h3><h3>But for many families, that’s exactly what it is.</h3>Flyers.&nbsp; &nbsp;Job boards.&nbsp; &nbsp;Facebook posts.You’ve probably tried all of them—and still, no one shows up. Or they come once, and never return.It’s one of the most frustrating parts of finding support for adults with disabilites whether you're hiring privately, or using Participant-Directed Services (PDS).&nbsp;And yet, families are expected to recruit, interview, and train staff like a seasoned hiring manager… without ever being shown how.If you're stuck wondering why your caregiver job post isn’t getting any bites, this article is for you.<figure id="figure-rnxz7dl8xamaze8v2l"><img id="rnxz7dl8xamaze8v2l" src="https://media.gettyimages.com/id/522147946/photo/teenage-girl-with-downs-syndrome-grandmother-outdoors.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=Sumet7yguF9_sbOfKvsLIMs7Xs1kxodzDXKTdrmQgg8=" alt="Teenage girl with downs syndrome, grandmother outdoors" title="Teenage girl with downs syndrome, grandmother outdoors" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: undefined undefined;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/522147946/photo/teenage-girl-with-downs-syndrome-grandmother-outdoors.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=Sumet7yguF9_sbOfKvsLIMs7Xs1kxodzDXKTdrmQgg8=" data-mce-style="aspect-ratio: 16/9; object-position: undefined undefined;"></figure><h3>Common Reasons Families Struggle to Hire Caregivers</h3>Here’s what I see over and over again:🗒️ Job descriptions are too vague (or too clinical) Using terms like “DSP,” “ADLs,” or “behavior support” without context can scare off great candidates who just need plain language. 🌐 You're relying on the wrong platforms Indeed, Facebook, and Nextdoor can help—but not without a strategy. Most families post once and hope for magic. That rarely works. 💰Pay is low, but the expectations are high Caregivers are often asked to manage medication, transportation, behavior, and more—for wages that rival fast food. The result? High turnover and low trust. 🔄 There’s no clear system for interviewing or training Even if someone good applies, the process often falls apart after the first conversation. Without a simple, repeatable system, good candidates slip through the cracks.<figure id="figure-b9f45y2bimaze9b8s"><img id="b9f45y2bimaze9b8s" src="https://media.gettyimages.com/id/1137349628/photo/teenage-girl-in-wheelchair-looking-at-mobile-phone-with-friend-in-park.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=C7Ntr9WM2rs1uDKAkWcLguIX7g_Wtddv3GUx8w5h52w=" alt="Teenage Girl In Wheelchair Looking At Mobile Phone With Friend In Park" title="Teenage Girl In Wheelchair Looking At Mobile Phone With Friend In Park" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1137349628/photo/teenage-girl-in-wheelchair-looking-at-mobile-phone-with-friend-in-park.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=C7Ntr9WM2rs1uDKAkWcLguIX7g_Wtddv3GUx8w5h52w=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>What to Do Differently</h3>Finding a caregiver that's a good fit for your family is far more than a single job post. You need a process.1. Write job ads like you're talking to a real person “We’re looking for someone who’s calm, kind, and dependable. You’ll help a young man with disabilities live a full, meaningful life at home and in the community.” 2. Use simple language—and visual storytelling Include a photo (with permission), describe the personality fit, and give examples of what the day-to-day looks like.3. Have a 3-question screening tool “What makes this kind of work meaningful for you?” “Are you comfortable helping with personal care?” “Do you prefer a routine or variety in your day?” 4. Support your caregivers early and often Clear expectations, check-ins, and a short onboarding can make the difference between someone staying 3 days or 3 years.<figure id="figure-5t3teblbymaze9scx"><img id="5t3teblbymaze9scx" src="https://media.gettyimages.com/id/1140069073/photo/sister-pushing-disabled-little-brother-in-wheelchair-around-neighborhood.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=Nef6989kIW54l5WP3lzHZYxFAQzmtCmFrfyjn6aXgbI=" alt="Sister pushing disabled little brother in wheelchair around neighborhood" title="Sister pushing disabled little brother in wheelchair around neighborhood" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: center center;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1140069073/photo/sister-pushing-disabled-little-brother-in-wheelchair-around-neighborhood.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=Nef6989kIW54l5WP3lzHZYxFAQzmtCmFrfyjn6aXgbI=" data-mce-style="aspect-ratio: 1/1; object-position: center center;"></figure><h3>Need Help Hiring a Caregiver? Start Here</h3>Hiring caregivers through Participant-Directed Services doesn’t have to feel like guesswork.I help families:Write job descriptions that actually attract applicants Set up screening tools to save time Understand how to compete even with lower pay Build teams that last &nbsp;I have a few openings for free strategy sessions sepficially families who are currently hiring or plan to hire caregivers and need a strategy that works.👉<a data-mce-href="https://sharrisonconsulting.com/support-for/find-a-caregiver" href="https://sharrisonconsulting.com/support-for/find-a-caregiver"> Click here to schedule your 1:1 session</a><figure id="figure-8nx5qxzuwamazea5iu"><img id="8nx5qxzuwamazea5iu" src="https://media.gettyimages.com/id/1347212805/photo/young-man-with-down-syndrome-with-his-mentoring-friend-sitting-outdoors-in-cafe-using-laptop.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=7HToIxPcKmG6AYHKZ1jqsEu6JLlkLSE5zkqlUlrWQB4=" alt="Young man with Down syndrome with his mentoring friend sitting outdoors in cafe using laptop." title="Young man with Down syndrome with his mentoring friend sitting outdoors in cafe using laptop." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1347212805/photo/young-man-with-down-syndrome-with-his-mentoring-friend-sitting-outdoors-in-cafe-using-laptop.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=7HToIxPcKmG6AYHKZ1jqsEu6JLlkLSE5zkqlUlrWQB4=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><figure id="figure-5ngsqsvzimazeb7ya" class=""></figure><h3>Meet Samantha&nbsp;</h3>Samantha Harrison is a disability consultant with over 13 years of experience helping Kentucky families navigate Medicaid waivers, hire caregivers through Participant-Directed Services (PDS), and build care steams that actually work.She’s on a mission to help families who are being left to manage complex systems alone—facing long waitlists, confusing rules, and impossible decisions without enough support. And with new Medicaid cuts looming, the stakes have never been higher.Samantha offers hands-on, personalized support to help families get clear answers, take action, and create sustainable solutions—without getting lost in the red tape. If you’re ready for real help, you’re in the right place.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">Connect with Samantha&nbsp;</a><figure id="figure-qncyf4k8samay23i17" class=""><img id="qncyf4k8samay23i17" src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure>

Why You’re Not Finding Good Caregivers (And What to Do)

<h3>When parents age—or pass away—there’s often no formal transition plan for who takes over care.</h3>And for many families, it lands on a sibling.<ul><li>Not because you asked for it.</li><li>Not because you're the best fit.</li><li>But because you were next in line, and no one else stepped up.</li></ul>Suddenly, you're in charge of medical decisions, housing, benefits, staffing, and day-to-day care. All while juggling your own life, job, and family.It’s a massive responsibility. And you’re not alone if you feel completely unprepared.<figure id="figure-ey0lw4mbkmay5iqqg"><img id="ey0lw4mbkmay5iqqg" src="https://media.gettyimages.com/id/1418493553/photo/portrait-of-happy-young-man-with-down-syndrome-with-his-mother-sitting-at-cafe-outdoors-and.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=ToWYQNKfKHbB5ljBggFE1Qp3bJe7DIfRNhTmDuOd6QQ=" alt="Portrait of happy young man with Down syndrome with his mother sitting at cafe outdoors and talking." title="Portrait of happy young man with Down syndrome with his mother sitting at cafe outdoors and talking." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1418493553/photo/portrait-of-happy-young-man-with-down-syndrome-with-his-mother-sitting-at-cafe-outdoors-and.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=ToWYQNKfKHbB5ljBggFE1Qp3bJe7DIfRNhTmDuOd6QQ=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>The Emotional Whiplash of Becoming “The One”</h3>Many siblings describe this moment as overwhelming, isolating, or even guilt-inducing. Some common thoughts I hear:“I love my brother, but I don’t know how to be his caregiver.”“I’m terrified I’ll make the wrong decision.”“I don’t want to live my life with resentment—or regret.”Even when families are close, this shift can bring up buried emotions, family conflict, or unresolved trauma. It’s a lot.But there is a way to do this with more clarity and less chaos.<figure id="figure-69demg6wqbmay2gomp"><img id="69demg6wqbmay2gomp" src="https://media.gettyimages.com/id/973216438/photo/senior-men-at-nature.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=PmEIRM_GtEMTGpMd7OrXZVI71hOAF07faf4vaKHMVIg=" alt="senior men at nature" title="senior men at nature" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/973216438/photo/senior-men-at-nature.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=PmEIRM_GtEMTGpMd7OrXZVI71hOAF07faf4vaKHMVIg=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>💡 &nbsp;Step One: Get the Lay of the Land</h3>Before you dive in, take a moment to step back and assess:<ul><li>Is there a Medicaid waiver or other benefit in place?</li><li>Has anyone documented care routines, medications, or preferences?</li><li>Are there guardianship or legal documents already set up?</li><li>What supports are being paid for—and which ones are provided by family?</li></ul> If the answer to most of these is “I don’t know”&nbsp; that’s okay. Most siblings are thrown in without a map. That’s where planning support comes in.<figure id="figure-dhfzskpzmmay2guh3"><img id="dhfzskpzmmay2guh3" src="https://media.gettyimages.com/id/1164358693/photo/disabled-man-works-in-the-garden.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=SbNnluAwzANvTOyxOvXQ_hVUF4eg3Iz3cZo29z1zxqM=" alt="Disabled man works in the garden" title="Disabled man works in the garden" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1164358693/photo/disabled-man-works-in-the-garden.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=SbNnluAwzANvTOyxOvXQ_hVUF4eg3Iz3cZo29z1zxqM=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Step Two: Build a Support Team</h3>You shouldn’t have to do this alone.Your first move isn’t to “fix everything.” It’s to build a circle of support. That might include:<ul><li>A disability consultant who can walk you through what’s available</li><li>A case manager who knows the waiver system</li><li>Other family members or trusted people who can help share the load</li><li>A legal or financial advisor if guardianship or trust questions come up</li></ul> The goal isn’t to become the expert—it’s to build a structure that doesn’t rely entirely on you. <figure id="figure-mzi2p4e5wtmay2gz1z"><img id="mzi2p4e5wtmay2gz1z" src="https://media.gettyimages.com/id/2169337548/photo/gentle-touch-of-married-couple-hands-man-with-disability-and-his-wife.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=J0VgYa7dz8BFy2vpdY4-SpaaiJjDP-fhdSgFyVUUyJM=" alt="Gentle touch of married couple hands, man with disability and his wife" title="Gentle touch of married couple hands, man with disability and his wife" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: center center;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2169337548/photo/gentle-touch-of-married-couple-hands-man-with-disability-and-his-wife.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=J0VgYa7dz8BFy2vpdY4-SpaaiJjDP-fhdSgFyVUUyJM=" data-mce-style="aspect-ratio: 1/1; object-position: center center;"></figure><h3>Step Three: Create a Realistic Game Plan</h3>You don’t need a perfect plan. But you do need a next step.Maybe that’s starting the Medicaid application.Maybe it’s documenting care routines and contact info.Maybe it’s just figuring out what supports are already in place.Every family is different. <figure id="figure-4rw1v89z6gmay4n0ak"><img id="4rw1v89z6gmay4n0ak" src="https://media.gettyimages.com/id/2173223092/photo/african-american-seniors-man-in-wheelchair-play-bocce-ball.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=tPaKIbv0qPtDuoTXtPtGoR2zcwlRt_hKKKmq6RauY60=" alt="African-American seniors, man in wheelchair play bocce ball" title="African-American seniors, man in wheelchair play bocce ball" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2173223092/photo/african-american-seniors-man-in-wheelchair-play-bocce-ball.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=tPaKIbv0qPtDuoTXtPtGoR2zcwlRt_hKKKmq6RauY60=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>✅ Start Here — Get the Support You Deserve</h3> If you’ve just found yourself in the role of “default caregiver,” you’re not failing. You’re adapting to something big—and you deserve real support.I work with siblings who want to do this well, without losing themselves in the process.📅 I have openings this month for 1:1 strategy sessions focused on sibling caregiving transitions. 👉<a data-mce-href="https://sharrisonconsulting.com/support-for/sibling-caregivers" href="https://sharrisonconsulting.com/support-for/sibling-caregivers"> Click here to schedule yours</a>You don’t have to figure it all out today. You just have to start.<figure id="figure-3unvloxjwrmay5kzid"><img id="3unvloxjwrmay5kzid" src="https://media.gettyimages.com/id/1391247384/photo/mature-adult-female-sits-next-to-her-autistic-brother.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=VUV8cscv0z5_QQGOK1MlRVbUwQPp6Ykbw_nBcMdtzqo=" alt="Mature adult female sits next to her Autistic brother" title="Mature adult female sits next to her Autistic brother" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1391247384/photo/mature-adult-female-sits-next-to-her-autistic-brother.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=VUV8cscv0z5_QQGOK1MlRVbUwQPp6Ykbw_nBcMdtzqo=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Meet Samantha&nbsp;</h3>Samantha Harrison is a disability consultant with over 13 years of experience helping Kentucky families navigate Medicaid waivers, hire caregivers through Participant-Directed Services (PDS), and build care steams that actually work.She’s on a mission to help families who are being left to manage complex systems alone—facing long waitlists, confusing rules, and impossible decisions without enough support. And with new Medicaid cuts looming, the stakes have never been higher.Samantha offers hands-on, personalized support to help families get clear answers, take action, and create sustainable solutions—without getting lost in the red tape. If you’re ready for real help, you’re in the right place.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">Connect with Samantha&nbsp;﻿</a><figure id="figure-qncyf4k8samay23i17" class="selected"><img id="qncyf4k8samay23i17" src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure>

When It Lands on You: Sibling Caregiving Realities

<h3>You Won’t Be Here Forever. And You Know It.</h3>A mother in her seventies called me last week. She’s been caring for her adult son with disabilities his whole life.But now, her own health is changing. And she’s terrified.She told me...<blockquote>I thought I had more time. But my body is saying otherwise.</blockquote>She has no idea who will step in. Her other children live far away. She doesn’t know what services are available, who to call, or how to even begin.<figure id="figure-mjhru899womay2gjdl"><img id="mjhru899womay2gjdl" src="https://media.gettyimages.com/id/1313401233/photo/adult-man-portrait-with-a-down-syndrome-photo-series.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=4s2237JQ9EuBK_vOwU3ui0YsyG1X5Jwy4KXtcv6mxhw=" alt="Adult Man Portrait with a Down Syndrome Photo Series" title="Adult Man Portrait with a Down Syndrome Photo Series" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1313401233/photo/adult-man-portrait-with-a-down-syndrome-photo-series.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=4s2237JQ9EuBK_vOwU3ui0YsyG1X5Jwy4KXtcv6mxhw=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Here’s the truth:</h3>There’s no emergency system that automatically picks up where you left off with managing, paperwork, daily care, or long-term needs.It falls on whoever is left.Usually a sibling. A niece. Or no one.👉 That’s why I help families prepare before a crisis hits. <figure id="figure-69demg6wqbmay2gomp"><img id="69demg6wqbmay2gomp" src="https://media.gettyimages.com/id/1405303816/photo/portrait-of-father-and-psychomotor-intellectual-disability-daughter-sitting-on-the-sofa-at.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=y_9PKgoOFfFanV_xY_AuyVKx8UUMoPn-mXUXozkMrkg=" alt="Portrait of father and psychomotor Intellectual disability daughter sitting on the sofa at home" title="Portrait of father and psychomotor Intellectual disability daughter sitting on the sofa at home" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1405303816/photo/portrait-of-father-and-psychomotor-intellectual-disability-daughter-sitting-on-the-sofa-at.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=y_9PKgoOFfFanV_xY_AuyVKx8UUMoPn-mXUXozkMrkg=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>💡 What We Can Do Together</h3> Whether you're just starting to think about the future or already facing the signs that it's time to prepare, here's what we’ll tackle in our session:<ul><li>Identify who could step in and how to prepare them</li><li>Outline what Medicaid services can and cannot do</li><li>Build a written roadmap that brings peace of mind</li><li>Explore alternatives that protect your loved one’s future</li><li>Take small steps that make a huge difference later</li></ul><figure id="figure-dhfzskpzmmay2guh3"><img id="dhfzskpzmmay2guh3" src="https://media.gettyimages.com/id/1164358693/photo/disabled-man-works-in-the-garden.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=SbNnluAwzANvTOyxOvXQ_hVUF4eg3Iz3cZo29z1zxqM=" alt="Disabled man works in the garden" title="Disabled man works in the garden" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1164358693/photo/disabled-man-works-in-the-garden.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=SbNnluAwzANvTOyxOvXQ_hVUF4eg3Iz3cZo29z1zxqM=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>✅ Start Here — Your First Step Matters</h3> I offer a focused session just for aging parents ready to face the future with clarity and a plan.📅 I have 2 openings this month for private strategy sessions.&nbsp;👉<a data-mce-href="https://sharrisonconsulting.com/support-for/future-planning-disabled-adults-parents" href="https://sharrisonconsulting.com/support-for/future-planning-disabled-adults-parents"> Click here to schedule yours.</a>You don’t have to figure this out alone. You just have to start. <figure id="figure-mzi2p4e5wtmay2gz1z"><img id="mzi2p4e5wtmay2gz1z" src="https://media.gettyimages.com/id/1312864140/photo/autistic-man-and-caretaker.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=G8qgXtphlmnlBGh99QVhpwKHC6NFIfAclEpIxttaFiI=" alt="Autistic man and caretaker" title="Autistic man and caretaker" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: center center;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1312864140/photo/autistic-man-and-caretaker.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=G8qgXtphlmnlBGh99QVhpwKHC6NFIfAclEpIxttaFiI=" data-mce-style="aspect-ratio: 1/1; object-position: center center;"></figure> Meet Samantha&nbsp;Samantha Harrison is a disability consultant with over 13 years of experience helping Kentucky families navigate Medicaid waivers, hire caregivers through Participant-Directed Services (PDS), and build care steams that actually work.She’s on a mission to help families who are being left to manage complex systems alone—facing long waitlists, confusing rules, and impossible decisions without enough support. And with new Medicaid cuts looming, the stakes have never been higher.Samantha offers hands-on, personalized support to help families get clear answers, take action, and create sustainable solutions—without getting lost in the red tape. If you’re ready for real help, you’re in the right place.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">Connect with Samantha&nbsp;</a><figure id="figure-qncyf4k8samay23i17"><img id="qncyf4k8samay23i17" src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure>

You Won’t Be Here Forever. And You Know It.

<figure id="figure-uzwnr9fs3jmao3n268" class=""><img id="uzwnr9fs3jmao3n268" src="https://images.unsplash.com/photo-1646315416699-d9ac443c1d5e?crop=entropy&amp;cs=tinysrgb&amp;fit=max&amp;fm=jpg&amp;ixid=M3wyNjI5NjF8MHwxfHNlYXJjaHwyMXx8cHJvYmxlbSUyMHNvbHZlfGVufDB8fHx8MTcwNjMyOTA5M3ww&amp;ixlib=rb-4.0.3&amp;q=80&amp;w=1080" alt="a neon sign that says houston we have a rocket on it" title="a neon sign that says houston we have a rocket on it" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: 45% 35%;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="45%" data-positiony="35%" data-fullwidth="false" data-mce-src="https://images.unsplash.com/photo-1646315416699-d9ac443c1d5e?crop=entropy&amp;cs=tinysrgb&amp;fit=max&amp;fm=jpg&amp;ixid=M3wyNjI5NjF8MHwxfHNlYXJjaHwyMXx8cHJvYmxlbSUyMHNvbHZlfGVufDB8fHx8MTcwNjMyOTA5M3ww&amp;ixlib=rb-4.0.3&amp;q=80&amp;w=1080" data-mce-style="aspect-ratio: 16/9; object-position: 45% 35%;"></figure><h3>🆘 15,000+ Kentuckians with disabilities are on a waitlist for critical life support services.</h3>The news says Medicaid cuts are about “saving money.” But here’s what that actually looks like:A teenager with autism loses their caregiver overnight. Now, mom can’t go to work.A 74-year-old man with paralysis sits in his apartment for 12 hours with no help to use the bathroom and develops bed sores costing 💵THOUSANDS 💵in medical bills.&nbsp;A young adult with a developmental disability is placed in a nursing home—costing 💰MILLIONS💰 more over their lifetime than if they were supported in their own home. 💸 THOUSANDS in avoidable ER visits. 💰 MILLIONS wasted on crisis care.That’s the real cost. It doesn’t save money. It shifts the financial burden of care services, takes people out of the workforce, and increases the healtcare costs.&nbsp;<figure id="figure-x9ukxnoph9mao5p3dh"><img id="x9ukxnoph9mao5p3dh" src="https://media.gettyimages.com/id/1405303816/photo/portrait-of-father-and-psychomotor-intellectual-disability-daughter-sitting-on-the-sofa-at.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=y_9PKgoOFfFanV_xY_AuyVKx8UUMoPn-mXUXozkMrkg=" alt="Portrait of father and psychomotor Intellectual disability daughter sitting on the sofa at home" title="Portrait of father and psychomotor Intellectual disability daughter sitting on the sofa at home" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1405303816/photo/portrait-of-father-and-psychomotor-intellectual-disability-daughter-sitting-on-the-sofa-at.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=y_9PKgoOFfFanV_xY_AuyVKx8UUMoPn-mXUXozkMrkg=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> What’s Being Lost Isn’t Luxury. It’s the Basics.</h3> Right now in Kentucky, more than 15,000 people are stuck on waitlists or have recently lost the services they need just to get through the day:🚪 Getting out of bed🍳 Preparing a meal🛁 Bathing or toileting💊 Taking medications🧹 Keeping their home safe and livable🚗 Making it to doctor appointments🛍️ Grocery shopping or managing money<figure id="figure-ad4k5p2s2dmao5p7k6"><img id="ad4k5p2s2dmao5p7k6" src="https://media.gettyimages.com/id/2154824661/photo/man-and-friend-with-disability-around-the-university.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=43bci6nwUnN2XTG7CvC3RZQCh_yaLMeNyBJRXjbtIQg=" alt="Man and friend with disability around the university" title="Man and friend with disability around the university" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2154824661/photo/man-and-friend-with-disability-around-the-university.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=43bci6nwUnN2XTG7CvC3RZQCh_yaLMeNyBJRXjbtIQg=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> What’s Really Happening Behind the Scenes:</h3> 🧓 Nearly 4,000 seniors and adults with physical disabilities are waiting for home and community-based services, many living alone, without reliable care.👶 Over 10,000 children and adults with intellectual and developmental disabilities (IDD) are on the waitlist, with an average wait time of 10 years.🏠 Around 4,000 adults with IDD need residential services, but most won’t qualify until a caregiver dies or there’s an emergency.⚠️ Thousands of children with autism were placed on a waiver not designed for them and now they’re being cut off without warning, leaving families scrambling.<figure id="figure-ozyoujj63pmao5pbro"><img id="ozyoujj63pmao5pbro" src="https://media.gettyimages.com/id/1248708457/photo/female-home-carer-supporting-old-woman-to-stand-up-from-the-sofa-at-care-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=nNCutuIGSSU4IFSVGxJQPd0pmwRhKsVTs4OJ9ZtnQ3s=" alt="Female home carer supporting old woman to stand up from the sofa at care home" title="Female home carer supporting old woman to stand up from the sofa at care home" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1248708457/photo/female-home-carer-supporting-old-woman-to-stand-up-from-the-sofa-at-care-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=nNCutuIGSSU4IFSVGxJQPd0pmwRhKsVTs4OJ9ZtnQ3s=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> Think Medicaid Cuts Don’t Affect You? Think Again.</h3>This isn’t just a disability issue. It’s already changing your world:💼 Your coworker quits because their child lost care. 🕒 Your doctor, mechanic, or server is out indefinitely—caring for a parent. 🏪 Your favorite local shop reduces hours because they can’t keep staff. 🚫 The workforce shrinks. Businesses lose revenue. 🧓 Your parent needs home care—but the waiver’s been cut.These aren’t hypotheticals.&nbsp; It’s happening everywhere.<figure id="figure-8150c2mbepmao5pfzs"><img id="8150c2mbepmao5pfzs" src="https://media.gettyimages.com/id/2169337548/photo/gentle-touch-of-married-couple-hands-man-with-disability-and-his-wife.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=J0VgYa7dz8BFy2vpdY4-SpaaiJjDP-fhdSgFyVUUyJM=" alt="Gentle touch of married couple hands, man with disability and his wife" title="Gentle touch of married couple hands, man with disability and his wife" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: 50% 40%;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="50%" data-positiony="40%" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2169337548/photo/gentle-touch-of-married-couple-hands-man-with-disability-and-his-wife.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=J0VgYa7dz8BFy2vpdY4-SpaaiJjDP-fhdSgFyVUUyJM=" data-mce-style="aspect-ratio: 16/9; object-position: 50% 40%;"></figure><h3> What Families Are Facing Isn’t Sustainable</h3>While the system delays, families are forced to carry full-time caregiving without:🩺 Pay, training, or backup 🧾 Legal or case management support 🔁 A stable team of caregivers ❌ Notice when services disappear<h3> The cost?</h3>💸 Parents leave the workforce💸 Siblings drain savings💸 Emergency room visits replace early supports💸 Families spend more, earn less, and burn out fasterAnd when families are pushed to the edge, everyone feels the impact—from workforce shortages to lost productivity to increased demand on emergency services.“Samantha helped me avoid pitfalls and consolidate the various parts of the waiver application into a complete package. She saved me lots of time by being so knowledgeable about the work itself and the process involved. The support we received was worth far more than our investment.” &nbsp;— A Mother<figure id="figure-2ei3bs1oycmao5pouv"><img id="2ei3bs1oycmao5pouv" src="https://media.gettyimages.com/id/2166332466/photo/patient-knitting-lesson.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=LM1psaCaoVcUcODzg9qgx-UZ6zO-_VReY2F5rorrFDk=" alt="Patient Knitting Lesson" title="Patient Knitting Lesson" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2166332466/photo/patient-knitting-lesson.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=LM1psaCaoVcUcODzg9qgx-UZ6zO-_VReY2F5rorrFDk=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>The Waitlist Is Long—But the Real Wait Is for a Crisis</h3> Most families think, “Once something serious happens, we’ll get help.” But that’s not how this works.Crises happen every day:🚨 A parent has a stroke 🚨 A child is pulled from school 🚨 A caregiver quits with no notice 🚨 A family misses one paycheck—and it all unravelsEven then, they’re told: “You’re still on the waitlist.”This isn’t a care system. It’s a delay system. And delay? Costs more. <figure id="figure-3lx5te1x6fmb0sqs1t"><img id="3lx5te1x6fmb0sqs1t" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> &nbsp;The Waitlist Is Long—But the Real Wait Is for a Crisis</h3>People assume that once something serious happens, then help arrives. &nbsp;But here’s the truth:Crises happen every day:<ul><li>A parent has a stroke</li><li>A caregiver quits with no notice</li><li>A child ends up in the ER after months without support</li><li>A young adult is removed from school because of short staffing</li><li>A family is one missed paycheck from collapse</li></ul>And still—no help. Most programs don’t have an emergency fast track.&nbsp;Even in a crisis, families are told: “You’re still on the waitlist.”This isn’t a system of care. &nbsp;It’s a system of delay, crisis, and damage control.And damage control? Costs more.💸 The ambulance ride 💸 The ER visit 💸 The lost income 💸 The caregiver burnout 💸 The missed early intervention that becomes a lifelong need<figure id="figure-yqda7o5ifmao5q2sy"><img id="yqda7o5ifmao5q2sy" src="https://media.gettyimages.com/id/505691822/photo/working-together-with-disability.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=-tGdJplNWe4V0vHbARgQOM8UAgUif6JtwPF0JqIqmoI=" alt="Working together with disability." title="Working together with disability." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/505691822/photo/working-together-with-disability.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=-tGdJplNWe4V0vHbARgQOM8UAgUif6JtwPF0JqIqmoI=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>How YOU can help. In just 30 seconds!&nbsp;</h3>The House just passed something called the One Big Beautiful Bill Act (H.R. 1). Yes—that’s its actual name. 🙄This bill includes cuts that would gut Medicaid and disability services as we know them.It’s now headed to the Senate. You can stop it.📣 Contact your senator today and tell them: Do not pass H.R. 1. 👉<a data-mce-href="https://www.ancor.org/actions/preserve-i-dd-services-tell-congress-protect-medicaid/" href="https://www.ancor.org/actions/preserve-i-dd-services-tell-congress-protect-medicaid/"> https://www.ancor.org/actions/preserve-i-dd-services-tell-congress-protect-medicaid/</a>Your voice matters—and it’s needed right now.<img id="h1alo255qbmao5q7la" src="https://media.gettyimages.com/id/1384600268/photo/cheerful-young-down-syndrome-waiter-taking-contactless-smartphone-payment-from-costumer-in.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=Asb3liFgRBaD9YFKCjhQJWzTCFSRxDTKGO8QGL-4S5c=" alt="Cheerful young Down Syndrome waiter taking contactless smartphone payment from costumer in take away restaurant." title="Cheerful young Down Syndrome waiter taking contactless smartphone payment from costumer in take away restaurant." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1384600268/photo/cheerful-young-down-syndrome-waiter-taking-contactless-smartphone-payment-from-costumer-in.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=Asb3liFgRBaD9YFKCjhQJWzTCFSRxDTKGO8QGL-4S5c=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"><h3>🛠️ You Deserve a Better Way</h3>If you’re in this—stuck, stretched, scared—you’re not alone. Real help doesn’t mean more pamphlets. It means hands-on support.Here’s what real help looks like:✔️ Know which waivers apply and how to apply ✔️ Find out if your crisis qualifies for a fast track ✔️ Learn how to recruit and keep reliable caregivers ✔️ Get support with housing, benefits, and legal prep ✔️ Create a system that works even if you can’t do it ✔️ Get a partner—not a checklist <figure id="figure-0sdu9kc0gcmao5qen5"><img id="0sdu9kc0gcmao5qen5" src="https://media.gettyimages.com/id/1313401295/photo/adult-man-portrait-with-a-down-syndrome-photo-series.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=nK1MZn6rsYx47jpYxKhl7IgSRVSmwNWL0hk494dEprc=" alt="Adult Man Portrait with a Down Syndrome Photo Series" title="Adult Man Portrait with a Down Syndrome Photo Series" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1313401295/photo/adult-man-portrait-with-a-down-syndrome-photo-series.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=nK1MZn6rsYx47jpYxKhl7IgSRVSmwNWL0hk494dEprc=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> Get the Help You Deserve</h3><h3>This isn’t your fault. But it is your move.</h3>If you’re ready for support that’s strategic, personalized, and built around what actually works.&nbsp;You don’t have to do it alone.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">👉 Click here to take the first step.</a><h3>Meet Samantha&nbsp;</h3> Samantha Harrison is a disability consultant with over 13 years of experience helping Kentucky families navigate Medicaid waivers, hire caregivers through Participant-Directed Services (PDS), and build care steams that actually work.She’s on a mission to help families who are being left to manage complex systems alone—facing long waitlists, confusing rules, and impossible decisions without enough support. And with new Medicaid cuts looming, the stakes have never been higher.Samantha offers hands-on, personalized support to help families get clear answers, take action, and create sustainable solutions—without getting lost in the red tape. If you’re ready for real help, you’re in the right place.<a data-mce-href="https://sharrisonconsulting.com/" href="https://sharrisonconsulting.com/">Connect with Samantha&nbsp;</a><figure id="figure-l5fxv4a0jkmao5qk60" class=""><img id="l5fxv4a0jkmao5qk60" src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure>

Education

What Happens When You Can’t Be the Caregiver Anymore?

After Graduation: Building a Life That Works

Why You’re Not Finding Good Caregivers (And What to Do)

When It Lands on You: Sibling Caregiving Realities

You Won’t Be Here Forever. And You Know It.

Life Support Is Failing: The Medicaid Crisis Already Affe...