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Beautiful young blonde woman looks daunted by stack of files

If you’re a mom navigating the world of self-directed services for your child with a developmental disability, chances are, life feels like a never-ending to-do list. The constant stream of paperwork, coordinating care, managing school or adult services, and simply trying to make the right decisions for your child’s future can feel overwhelming. And let’s be honest—most days, it’s exhausting.The good news? You’re not alone, and you don’t have to do this by yourself.<figure id="figure-ouikxji5nqm0viai7x"><img id="ouikxji5nqm0viai7x" src="https://media.gettyimages.com/id/1425940486/photo/hispanic-mother-caring-for-wheelchair-bound-disabled-son-in-the-kitchen-giving-him-a-drink.jpg?b=1&s=2048x2048&w=0&k=20&c=F7jpVShz_mM7exszNc2ID3GbMkJJ1q2uR0WF99QF0oI=" alt="Hispanic mother caring for wheelchair-bound disabled son in the kitchen, giving him a drink while smiling." title="Hispanic mother caring for wheelchair-bound disabled son in the kitchen, giving him a drink while smiling." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: undefined undefined;" data-corners="default" data-aspect="16:9" data-caption="" data-positionX="undefined" data-positionY="undefined" data-fullWidth="false"/></figure><h3>The Silent Struggle of Moms Everywhere</h3>Moms like you are often the backbone of your child’s care, handling everything from medical appointments and therapy sessions to educational plans and future caregiving decisions. It’s an all-encompassing role that demands your attention every minute of the day. But with all that responsibility, it’s easy to feel like you’re losing control.Do any of these sound familiar?<ul><li>Feeling overwhelmed by the constant administrative tasks, paperwork, and meetings.</li></ul> <ul><li>Worrying about finding the right services and support for your child, while navigating a confusing system.</li></ul> <ul><li>Struggling with burnout as you balance caregiving with the demands of daily life.</li></ul> <ul><li>Wondering if you’re doing enough, or feeling guilty that you can’t always manage it all.</li></ul> If so, know this: it’s okay to need help, and it’s okay to seek support. Taking care of your child is a priority, but you can’t pour from an empty cup. <figure id="figure-j4zhz4xelm0viap6u"><img id="j4zhz4xelm0viap6u" src="https://media.gettyimages.com/id/142378762/photo/mother-with-disabled-son-in-walker-outdoors.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=f9uijqum8tr_siWjexxR1LwY1NcY7XAlr1hZsNyx6RY=" alt="Mother with disabled son in walker outdoors" title="Mother with disabled son in walker outdoors" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: undefined undefined;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/142378762/photo/mother-with-disabled-son-in-walker-outdoors.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=f9uijqum8tr_siWjexxR1LwY1NcY7XAlr1hZsNyx6RY=" data-mce-style="aspect-ratio: 16/9; object-position: undefined undefined;"></figure><h3>What If You Could Reclaim Control?</h3>Imagine waking up each morning with a clearer plan, knowing that you’ve got someone in your corner to help guide you through the maze of self-directed services. Someone who not only understands the system but can provide the emotional and strategic support you need to feel empowered again.That’s exactly what 1:1 mentoring can offer: a space to breathe, get organized, and move forward with confidence.<figure id="figure-winka4npnjm0viatmf"><img id="winka4npnjm0viatmf" src="https://media.gettyimages.com/id/1957072869/photo/down-syndrome-woman-and-her-mother-playing-pick-up-sticks-at-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=DLMmybdVxPhIjAyfPsNuTd28iR1ecnujDSJYsmu_Yj4=" alt="Down syndrome woman and her mother playing pick up sticks at home" title="Down syndrome woman and her mother playing pick up sticks at home" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1957072869/photo/down-syndrome-woman-and-her-mother-playing-pick-up-sticks-at-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=DLMmybdVxPhIjAyfPsNuTd28iR1ecnujDSJYsmu_Yj4=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>What Personalized Mentoring Can Do for You</h3>This is more than just guidance—it’s about transforming the way you approach your daily challenges. By working together 1:1, moms gain a partner who can help them:Cut Through the Overwhelm: Let’s work together to create systems that streamline paperwork, meetings, and services, so you can focus on your child and your own well-being. Find the Right Resources: Navigating the world of waivers, services, and supports can feel like an impossible task. With expert guidance, you’ll learn how to access the right resources that make the most sense for your child. Balance Your Life: Caregiving doesn’t have to mean sacrificing every other part of your life. By creating better routines and delegating tasks, you’ll find a healthier balance between caregiving, work, and personal time. Plan for the Future: It’s never too early to think about what comes next. Together, we’ll map out a plan that sets your child up for success—whether it’s transitioning to adult services, managing a waiver program, or building a long-term care plan.<figure id="figure-sz4bhkmxxqm0vib24k"><img id="sz4bhkmxxqm0vib24k" src="https://media.gettyimages.com/id/1392723143/photo/child-with-multiple-disabilities-in-a-wheelchair-playing-with-a-soccer-ball-with-her-mother.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=f2tJG2LVr1mA46Ee6RWXMdr6C07swoqjdtVNRm1R4xE=" alt="Child with multiple disabilities in a wheelchair playing with a soccer ball with her mother outdoors." title="Child with multiple disabilities in a wheelchair playing with a soccer ball with her mother outdoors." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1392723143/photo/child-with-multiple-disabilities-in-a-wheelchair-playing-with-a-soccer-ball-with-her-mother.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=f2tJG2LVr1mA46Ee6RWXMdr6C07swoqjdtVNRm1R4xE=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> Meet Samantha: Your Support, Your Guide</h3><figure id="figure-ycwb0frlumm0vi3p8n"><img id="ycwb0frlumm0vi3p8n" src="https://cdn.durable.co/blocks/cRYPsO4Sh3x3Qzwz4HFn4wzXN09WFIVFqcVRw4DqySuGsZCQF61hGU8kL1Ge79Fy.png" alt="two gray pencils on yellow surface" title="two gray pencils on yellow surface" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: center center;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/cRYPsO4Sh3x3Qzwz4HFn4wzXN09WFIVFqcVRw4DqySuGsZCQF61hGU8kL1Ge79Fy.png" data-mce-style="aspect-ratio: 1/1; object-position: center center;"></figure>Meet Samantha Harrison, a seasoned expert who’s helped countless families just like yours regain control of their lives. With personalized 1:1 mentoring, Samantha provides moms with the tools, strategies, and emotional support to lighten the load and bring back a sense of calm and confidence.No more feeling like you’re in this alone. With the right support, you can gain clarity, reduce stress, and focus on what matters most: your child’s happiness and your own peace of mind.<h3>Ready to Take Back Control?</h3>If the overwhelm has been building up and you’re ready for a change, it’s time to explore how 1:1 mentoring can help. There’s a way forward, and it starts with making space for yourself in this journey.<a data-mce-href="https://sharrisonconsulting.com/familymentoring" href="https://sharrisonconsulting.com/familymentoring">Reach out today</a> to see how personalized support can make all the difference. You deserve to feel empowered, organized, and confident in the choices you’re making for your child and for yourself.<a data-mce-href="https://sharrisonconsulting.com/" href="https://sharrisonconsulting.com/">Learn more about mentoring and other resources!</a>

Personalized Support for Overwhelmed Moms Managing Your Child's Care Services

For parents of adults with developmental disabilities, one of the hardest questions to ask yourself is: What will happen when I’m no longer here?It’s a fear that weighs heavily. Who will take care of your child when you’re gone?Will their sibling be ready and able to step into that role? What do you need to do now to make sure your loved one’s life continues smoothly?Planning for the future can feel overwhelming, but with the right steps, it’s possible to prepare.For siblings, the idea of taking over care for a brother or sister with developmental disabilities can be both overwhelming and emotionally challenging.And as a parent, facing this transition can bring both peace of mind and anxiety.<figure id="figure-5fz7buhohjm0vgpk56"><img id="5fz7buhohjm0vgpk56" src="https://media.gettyimages.com/id/1405303762/photo/father-and-psychomotor-intellectual-disability-daughter-having-breakfast-at-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=zoxGXtwSjzHCissvX0sHMVN5gz2NJYgd46R8PYny84c=" alt="Father and psychomotor Intellectual disability daughter having breakfast at home" title="Father and psychomotor Intellectual disability daughter having breakfast at home" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1405303762/photo/father-and-psychomotor-intellectual-disability-daughter-having-breakfast-at-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=zoxGXtwSjzHCissvX0sHMVN5gz2NJYgd46R8PYny84c=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>The Worries Keeping Parents Up at Night </h3>For aging parents, the future can feel uncertain:<ul><li>Will my child be okay without me? This question haunts many parents. You worry that no one will care for your child the way you do, or that they’ll struggle to cope after losing such an important figure in their life.</li></ul> <ul><li>Will my other children be ready to take on this responsibility? You hope their siblings will step in when needed, but you can’t help but wonder about the emotional and logistical toll this will take on them.</li></ul> <ul><li>Have I done enough to prepare for the future? The process of getting legal documents in order, setting up long-term care plans, and ensuring the right resources are in place can feel overwhelming.</li></ul><figure id="figure-m2jq1jig3m0vgq54s"><img id="m2jq1jig3m0vgq54s" src="https://media.gettyimages.com/id/521503546/photo/three-generations-girl-with-down-syndrome.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=0l-5Jd9OMhsN8aPIGwNebubdTefm23qEOle-4ozviHA=" alt="Three generations, girl with down syndrome" title="Three generations, girl with down syndrome" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/521503546/photo/three-generations-girl-with-down-syndrome.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=0l-5Jd9OMhsN8aPIGwNebubdTefm23qEOle-4ozviHA=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure> <h3>Siblings Face a Complex Future</h3>As a sibling of an adult with developmental disabilities, you may face unique challenges:The Emotional Weight of Caregiving: Stepping into the caregiver role isn’t just about handling day-to-day tasks. It comes with an emotional burden—feelings of guilt, grief, or anxiety about whether you can meet the high expectations you’ve set for yourself. Navigating a System They Didn’t Build: You may not have been heavily involved in your sibling’s care until now. Suddenly, you’re thrust into a complex system you don’t fully understand, with little time to catch up. Balancing Their Own Lives with Caregiving: You’re likely already juggling a career, family, and personal goals. Taking on caregiving adds another layer of complexity, and it’s natural to wonder how you’ll find balance. <figure id="figure-9bfap3b286m0vgqkki" class=""><img id="9bfap3b286m0vgqkki" src="https://media.gettyimages.com/id/1211948599/photo/well-groomed-woman-in-a-wheelchair-with-a-guardian-disabled-woman-with-mom.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=jtLY-SBQI8bpmr5k3ENNAMcbFExc48bc7G42PtiILXs=" alt="Well-groomed woman in a wheelchair with a guardian.Disabled woman with mom" title="Well-groomed woman in a wheelchair with a guardian.Disabled woman with mom" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1211948599/photo/well-groomed-woman-in-a-wheelchair-with-a-guardian-disabled-woman-with-mom.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=jtLY-SBQI8bpmr5k3ENNAMcbFExc48bc7G42PtiILXs=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>What Parents Can Do to Prepare Their Children for the Transition</h3>There are steps you can take now to ensure your child’s care continues smoothly when you’re no longer able to provide it. By preparing in advance, you can ease the burden on your children and create a plan that sets everyone up for success.Here’s how you can start preparing:Create a Comprehensive Care Plan: A detailed care plan should cover everything from daily routines and medical needs to social connections and long-term goals. This will be a roadmap for siblings stepping into the caregiving role, giving them the guidance they need to make informed decisions. Involve Siblings Early: Get siblings involved in care decisions long before you’re gone. Have them participate in meetings, meet service providers, and learn how the system works. This will give them the confidence to step in when needed.Establish Legal and Financial Safeguards: Make sure special needs trusts and legal arrangements are in place well before the transition. Work with professionals to ensure all documents are up-to-date and reflect your family’s wishes. Open Conversations About Future Care: Talk openly about the future with your children. Make sure they understand their roles and responsibilities, while also allowing space for them to express concerns or hesitations.<figure id="figure-zpegqmejdpm0vhwakz"><img id="zpegqmejdpm0vhwakz" src="https://media.gettyimages.com/id/1440033624/photo/asian-attractive-family-playing-with-down-syndrome-son-in-living-room-beautiful-loving-mother.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=uQxhx-aLxXQanqiv_PKmKwkdlB0q9a-t9MGDer_Gz6c=" alt="Asian attractive family playing with down syndrome son in living room. Beautiful loving mother and father take care and teaching young man with autism or special needs play ukulele indoors at home." title="Asian attractive family playing with down syndrome son in living room. Beautiful loving mother and father take care and teaching young man with autism or special needs play ukulele indoors at home." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1440033624/photo/asian-attractive-family-playing-with-down-syndrome-son-in-living-room-beautiful-loving-mother.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=uQxhx-aLxXQanqiv_PKmKwkdlB0q9a-t9MGDer_Gz6c=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>For Siblings: Preparing to Take Over Care</h3>Stepping into the role of caregiver for a sibling with developmental disabilities is a major life change. Here’s what siblings can do now to prepare:Get Familiar with Services and Supports: Take the time to understand the services and supports your sibling relies on. Meet with their care providers, learn about the systems they use, and ask questions to get a clear picture of how things work. Start Small, Build Confidence: Taking on full responsibility may feel overwhelming, but starting with small tasks can help you build confidence. Gradually get involved in daily routines or attend key meetings alongside your parents to ease into the role. Create a Support Network: You don’t have to do it all alone. Build a support network of trusted family, friends, and professionals to share the load and ensure there are backup plans in place when needed.<figure id="figure-15gpc5012m0vhwtsm"><img id="15gpc5012m0vhwtsm" src="https://images.unsplash.com/photo-1478061653917-455ba7f4a541?crop=entropy&amp;cs=tinysrgb&amp;fit=max&amp;fm=jpg&amp;ixid=M3wyNjI5NjF8MHwxfHNlYXJjaHwxfHxmYW1pbHklMjBkaXNhYmlsaXR5JTIwfGVufDB8fHx8MTcwNjEyMzEyOHww&amp;ixlib=rb-4.0.3&amp;q=80&amp;w=1080" alt="photo of two man and one woman standing near tree" title="photo of two man and one woman standing near tree" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 3/2; object-position: 0% 0%;" data-corners="default" data-aspect="3:2" data-caption="" data-positionx="0%" data-positiony="0%" data-fullwidth="false" data-mce-src="https://images.unsplash.com/photo-1478061653917-455ba7f4a541?crop=entropy&amp;cs=tinysrgb&amp;fit=max&amp;fm=jpg&amp;ixid=M3wyNjI5NjF8MHwxfHNlYXJjaHwxfHxmYW1pbHklMjBkaXNhYmlsaXR5JTIwfGVufDB8fHx8MTcwNjEyMzEyOHww&amp;ixlib=rb-4.0.3&amp;q=80&amp;w=1080" data-mce-style="aspect-ratio: 3/2; object-position: 0% 0%;"></figure><h3> The Path Forward for Families</h3>Planning for the future isn’t easy, but it’s essential to ensure your child continues receiving the care they need—even after you’re gone.Parents and siblings can start working together now to create a plan that offers peace of mind and a smooth transition when the time comes.The key is not to wait.By addressing these concerns today, your family can build a future where everyone feels secure, supported, and ready for what’s next. <h3>Help is here!&nbsp;</h3><figure id="figure-filueh56osm0vhuv8t"><img id="filueh56osm0vhuv8t" src="https://cdn.durable.co/blocks/cRYPsO4Sh3x3Qzwz4HFn4wzXN09WFIVFqcVRw4DqySuGsZCQF61hGU8kL1Ge79Fy.png" alt="Young teenage female patient talking to professional mental therapist" title="Young teenage female patient talking to professional mental therapist" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: center center;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/cRYPsO4Sh3x3Qzwz4HFn4wzXN09WFIVFqcVRw4DqySuGsZCQF61hGU8kL1Ge79Fy.png" data-mce-style="aspect-ratio: 1/1; object-position: center center;"></figure>Meet Samantha Harrison, an expert in helping families prepare for the future with confidence and clarity. Samantha works with aging parents and siblings to create tailored, strategic plans that ensure your loved one’s care will be seamless—both now and when it’s time to pass the baton. Don’t wait until the weight feels too heavy—reach out today to see how personalized support can lighten the load and give your family the peace of mind you deserve.<a data-mce-href="https://sharrisonconsulting.com/" href="https://sharrisonconsulting.com/">Work with Samantha&nbsp;</a>

Life After Mom and Dad: Expert Support for Aging Parents and Siblings

<h3>Feel free to copy and paste the template before, edit it to make it your own, write your own letter urging Kentucky to fund the Medicaid waiver programs at the full 100% of the rate study findings, or greater!&nbsp;</h3><h3>Need more info about the rates and public comment peroid?&nbsp; Learn more in this blog article.&nbsp;</h3> TEMPLATE&nbsp;email to: medicaidpubliccomment@ky.gov&nbsp;&nbsp;Subject: Serious Concerns re: Waiver Funding&nbsp;Dear Department for Medicaid Services,I am reaching out not just for my loved one, but for countless families across Kentucky who are struggling to access the care they so desperately need. I am the parent/sibling/caregiver of a person who depends on Medicaid waiver services to live a fulfilling life in the community, and I am heartbroken and frustrated by the proposed 70% implementation of the 1915(c) waiver rate study.Families like mine are already fighting every day to secure consistent care. Right now, we're facing long waitlists, unofficial delays, and fewer and fewer providers available to serve us. The reality is that access to care is not just an issue—it’s a crisis. This 70% implementation plan will only make it worse. With fewer resources, providers may be forced to reduce services or, even worse, close their doors. In many areas, families have nowhere else to turn. What happens to our loved ones when the services they rely on disappear?Moreover, the quality of care is at serious risk. Direct care workers are already underpaid for the critical work they do. With 69% of services continuing to be reimbursed at current levels, the workforce crisis will deepen, and quality care will be harder to maintain. Families like mine cannot afford to lose skilled, compassionate caregivers who keep our loved ones safe and thriving.This proposal disproportionately impacts our most vulnerable populations—adults and children with intellectual and developmental disabilities, the elderly, the medically fragile, and others who rely on these services to stay in their homes and communities. We cannot stand by and watch this happen.I am asking—pleading—for you to consider the long-term impact this decision will have on families like mine. Implement the rate study at 100%, or at a level equal to or greater than current rates, so that all waiver services receive the funding they need to survive and thrive.We are counting on you.&nbsp;Sincerly,&nbsp;[Your Name]&nbsp;[Your Role: Parent/Sibling/Caregiver/etc]&nbsp;

Public Comment Letter Template

If your family relies on Medicaid Waiver services in Kentucky, you need to be aware of some important changes that could directly impact your loved one’s care. Proposed changes to the way the state reimburses providers may limit access to care, reduce service quality, and make it harder for you to find or keep good caregivers. In this blog, we'll break down what's happening and what you can do about it.<h3>What’s Happening?</h3> Kentucky is proposing a new payment system for Medicaid Waiver services, which help families access essential care for loved ones with disabilities and medical needs. While the goal is to implement a new reimbursement rate methodology, the current proposal only funds 70% of the rates recommended by a recent rate study. This means that many services will not receive the increase needed to sustain providers or improve access to care.<h3> </h3><figure id="figure-ztcowpew5im0vb9xa8"><img id="ztcowpew5im0vb9xa8" src="https://media.gettyimages.com/id/1405303762/photo/father-and-psychomotor-intellectual-disability-daughter-having-breakfast-at-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=zoxGXtwSjzHCissvX0sHMVN5gz2NJYgd46R8PYny84c=" alt="Father and psychomotor Intellectual disability daughter having breakfast at home" title="Father and psychomotor Intellectual disability daughter having breakfast at home" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1405303762/photo/father-and-psychomotor-intellectual-disability-daughter-having-breakfast-at-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=zoxGXtwSjzHCissvX0sHMVN5gz2NJYgd46R8PYny84c=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> How Does This Impact Your Family?</h3> 💡 Access to Care Could Get Worse Right now, many families in Kentucky already face long wait times and struggle to find caregivers or services. If the proposed changes go into effect, these issues could become even more serious. Services like residential care and nutrition support are already hard to find, and there are unofficial waitlists for case management across the state. The funding changes could make it harder to get the care your family needs.🏥 Providers May Struggle to Stay Open The new payment rates will not increase for most providers, which could force some of them to reduce services or even close their doors. If your provider is affected, it might mean losing access to essential services or traveling further to find care. This is especially concerning in rural areas, where providers are already scarce.🔍 Quality of Care May Decline Without an increase in funding, many caregivers won't receive a wage increase. Kentucky is already facing a caregiver shortage, and stagnant wages will make it even harder to recruit and keep good caregivers. This could lead to a drop in the quality of care your loved one receives, as overworked or underpaid staff leave for better opportunities. <figure id="figure-4v29f6f22gm0vbag11"><img id="4v29f6f22gm0vbag11" src="https://media.gettyimages.com/id/1349908664/photo/young-man-with-down-syndrome-and-his-tutor-with-arms-around-looking-at-camera-indoors-at.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=wlyEtgheqYfr9JFr-eeeSTAG_hfSlg3xok4Z_K1zq8g=" alt="Young man with Down syndrome and his tutor with arms around looking at camera indoors at school" title="Young man with Down syndrome and his tutor with arms around looking at camera indoors at school" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1349908664/photo/young-man-with-down-syndrome-and-his-tutor-with-arms-around-looking-at-camera-indoors-at.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=wlyEtgheqYfr9JFr-eeeSTAG_hfSlg3xok4Z_K1zq8g=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure> Who Will Be Affected Most? The populations most at risk from these changes include:🧑‍🦼 Adults and children with intellectual or developmental disabilities (I/DD) 👵 The elderly 🧠 People with brain injuries 🏥 Individuals who are medically fragile or dependent on ventilators These groups rely heavily on Medicaid Waiver services to remain in community-based settings, and the proposed funding changes could leave them without the support they need.<h3>&nbsp;</h3><figure id="figure-ohkxjmtvxm0vbayar"><img id="ohkxjmtvxm0vbayar" src="https://cdn.durable.co/blocks/28LxmfEJcwkRxk6BY5ReI5Y7DAZUQoXf9E6dujZCPSgK0uAK2O7VxdanQvxokRs4.jpg" alt="Asian female doctor Counseling an old woman at home Fill out the medical form at the clipboard. Write a prescription sitting on the sofa at home during the visit." title="Asian female doctor Counseling an old woman at home Fill out the medical form at the clipboard. Write a prescription sitting on the sofa at home during the visit." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/28LxmfEJcwkRxk6BY5ReI5Y7DAZUQoXf9E6dujZCPSgK0uAK2O7VxdanQvxokRs4.jpg" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> What Can You Do?</h3>If you’re concerned about how these changes could affect your family, now is the time to act. The state needs to hear from families like yours, who rely on Medicaid Waiver services to care for their loved ones. By sending an email to the state, you can help push for better funding and protect access to care.<h3><a data-mce-href="https://sharrisonconsulting.com/blog/public-comment-letter-template" href="https://sharrisonconsulting.com/blog/public-comment-letter-template">✍️ Take Action Now: Send an Email</a></h3><h3>THE PUBLIC COMMENT PERIOD ENDS ON 9/13!&nbsp;</h3>Email: medicaidpubliccomment@ky.gov&nbsp;Share your story with the state to make sure they understand how important these services are.Ask them to fully fund Medicaid Waiver services at 100% of the recommended rate to protect quality care. Your voice can make a difference in ensuring that families like yours continue to have access to the services they need.Need a done-for-you email template?&nbsp;<h3><a data-mce-href="https://sharrisonconsulting.com/blog/public-comment-letter-template" href="https://sharrisonconsulting.com/blog/public-comment-letter-template">Get a free email template here!&nbsp;</a></h3> Want more info?&nbsp;Here is the info from the Department for Medicaid Services.&nbsp;<a data-mce-href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/WaiverRatesPublicCommentNotice.pdf" href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/WaiverRatesPublicCommentNotice.pdf">Public Comment Period Notice&nbsp;</a><a data-mce-href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/HCBSRateStudyFinalReport.pdf" href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/HCBSRateStudyFinalReport.pdf">Rate Study Summary Report&nbsp;</a>ABI Acute: <a data-mce-href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/ABIWaiverforPublicComment.PDF" href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/ABIWaiverforPublicComment.PDF">Waiver Application </a>and<a data-mce-href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/ABIsummary.pdf" href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/ABIsummary.pdf"> Summary</a>ABI LTC: <a data-mce-href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/ABILTCWaiverforPublicComment.PDF" href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/ABILTCWaiverforPublicComment.PDF">Waiver Application</a> and <a data-mce-href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/ABILTCsummary.pdf" href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/ABILTCsummary.pdf">Summary</a> HCB: <a data-mce-href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/HCBWaiverforPublicComment.PDF" href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/HCBWaiverforPublicComment.PDF">Waiver Application</a> and <a data-mce-href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/HCBSummary.pdf" href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/HCBSummary.pdf">Summary</a> MIIW: <a data-mce-href="Waiver%20Application" href="Waiver%20Application">Waiver Application</a> and <a data-mce-href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/MIIWsummary.pdf" href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/MIIWsummary.pdf">Summary</a> MPW:<a data-mce-href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/MPWforPublicComment.PDF" href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/MPWforPublicComment.PDF"> Waiver Application</a> and <a data-mce-href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/MPWsummary.pdf" href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/MPWsummary.pdf">Summary</a> SCL: <a data-mce-href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/SCLforPublicComment.PDF" href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/SCLforPublicComment.PDF">Waiver Application </a>and <a data-mce-href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/SCLsummary.pdf" href="https://www.chfs.ky.gov/agencies/dms/dca/waivers/SCLsummary.pdf">Summary&nbsp;</a> Medicaid Waiver services are vital for thousands of families in Kentucky, and the proposed funding changes could have far-reaching effects. From longer waitlists to fewer providers and a decline in care quality, these changes may impact your ability to access the services your loved one relies on. By staying informed and taking action, you can help protect your family’s access to care.Let’s make sure the state knows that families are counting on them to fully fund these services and keep caregivers and providers available for those who need them most.&nbsp; Stay Informed, Stay Involved.<h3>Need help navigating Medicaid waiver services.</h3><figure id="figure-uqr3k1858m0vbbv9x"><img id="uqr3k1858m0vbbv9x" src="https://cdn.durable.co/blocks/cRYPsO4Sh3x3Qzwz4HFn4wzXN09WFIVFqcVRw4DqySuGsZCQF61hGU8kL1Ge79Fy.png" alt="Female Doctor in Hospital Reassuring Patient" title="Female Doctor in Hospital Reassuring Patient" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: center center;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/cRYPsO4Sh3x3Qzwz4HFn4wzXN09WFIVFqcVRw4DqySuGsZCQF61hGU8kL1Ge79Fy.png" data-mce-style="aspect-ratio: 1/1; object-position: center center;"></figure><h3> Help is here!&nbsp;</h3>Access 1:1 mentoring, care consulting to make a plan for your child's future, or help navigating our complicated system!&nbsp;Get help at <a data-mce-href="https://sharrisonconsulting.com/" href="https://sharrisonconsulting.com/">sharrisonconsulting.com</a>

What You Need to Know: Medicaid Waiver Funding Changes Could Affect Your Family’s Care Services

<h3>🔥 Got PDS Questions? Get the Answers You Need! 🔥</h3> If you’re a case manager working with Participant-Directed Services (PDS), you’ve probably found yourself asking, “How am I supposed to explain PDS to my clients when I barely understand it myself?” You’re not alone. Whether it’s navigating the nuances of self-direction or figuring out how to support clients when they’re the ones hiring staff, PDS can feel like an unscripted adventure.That’s why PDS Unscripted exists. This training is designed to break down the WHO-WHAT-WHEN-WHERE-WHY of Participant-Directed Services, so you can feel confident guiding your clients through self-direction.<h3>Common Questions, Real Answers</h3> Have you ever wondered:❓"Why do we have to offer PDS?" ❓"What the heck am I supposed to do?" ❓"Do I just sit here while they do everything themselves?" ❓"If they pick their own staff, how will I know if they picked the right ones?" ❓"My client can't find staff, what should we do?" These questions might seem basic, but they’re totally valid—and honestly, kinda funny when you think about it! But let’s get real for a second: these questions highlight a huge gap in the training case managers are receiving.The Role of Case Managers in PDS As a case manager, you’re a foundational part of the PDS system. The problem is, many case managers haven’t been formally educated on tangible support practices at the state level. This leaves you with big responsibilities but not enough guidance to handle them.Here’s what you need to know:Having questions about PDS doesn’t mean...❌ You’re not a competent case manager. ❌ PDS is too hard for your clients to understand. But it does mean...⚠️ Kentucky is falling behind on providing quality education to case managers. ⚠️ The self-direction system in Kentucky isn’t giving enough hands-on support to participants. ⚠️ The guidance you’re receiving might be unclear, vague, or duplicative. Time to Change the NarrativeThe truth is, PDS can be a powerful tool for your clients—giving them the freedom to manage their own care, hire their own staff, and make decisions that work for their lives. But without the right support, it can feel overwhelming for both case managers and participants.PDS Unscripted is here to change that. This training will walk you through the WHO, WHAT, WHEN, WHERE, WHY, and HOW of PDS, giving you the practical knowledge and confidence you need to:✔️ Clearly explain PDS to your clients. ✔️ Guide participants through staff hiring and management. ✔️ Help clients problem-solve when challenges arise, like staffing shortages. <h3>Don’t Miss This Opportunity</h3>Whether you’re brand new to PDS or you’ve been navigating it for years, PDS Unscripted is your chance to get clarity and practical answers to the questions that matter most.The best part? You’ll leave with tangible tools and insights that make your job easier and help your clients thrive.Learn more about<a data-mce-href="https://sharrisonconsulting.com/case-management-training" href="https://sharrisonconsulting.com/case-management-training"> PDS Unscripted and Case Manager Training&nbsp;</a>

PDS Unscripted: Waiver Case Management Training

Being a mom means doing whatever it takes to ensure your child has the care they need, even when the system feels like it’s working against you. If you’re stuck on the Medicaid waiver waitlist, every day can feel like a battle—fighting to fill the gaps, searching for solutions, and trying to hold it all together for your family.But you don’t have to face this alone. There are real ways to get the support you need while you wait.<h3>Mentoring for Moms Who Do It All</h3><figure id="figure-b6nnh69w2m0u9troy"><img id="b6nnh69w2m0u9troy" src="https://images.unsplash.com/photo-1478061653917-455ba7f4a541?crop=entropy&amp;cs=tinysrgb&amp;fit=max&amp;fm=jpg&amp;ixid=M3wyNjI5NjF8MHwxfHNlYXJjaHwzfHxEb3duJTIwc3luZHJvbWUlMjB8ZW58MHx8fHwxNzE4NDUxMzk4fDA&amp;ixlib=rb-4.0.3&amp;q=80&amp;w=1080" alt="photo of two man and one woman standing near tree" title="photo of two man and one woman standing near tree" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://images.unsplash.com/photo-1478061653917-455ba7f4a541?crop=entropy&amp;cs=tinysrgb&amp;fit=max&amp;fm=jpg&amp;ixid=M3wyNjI5NjF8MHwxfHNlYXJjaHwzfHxEb3duJTIwc3luZHJvbWUlMjB8ZW58MHx8fHwxNzE4NDUxMzk4fDA&amp;ixlib=rb-4.0.3&amp;q=80&amp;w=1080" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure>You’ve been juggling the impossible—managing your child’s care, balancing family responsibilities, and trying to make sense of complicated systems, all while putting your needs on the back burner. It’s exhausting, and it feels like no one truly understands how much weight you’re carrying.You deserve to have someone in your corner, guiding you through the overwhelming details of self-direction, and offering personalized advice for your unique situation.<a data-mce-href="https://sharrisonconsulting.com/mentoring-2" href="https://sharrisonconsulting.com/mentoring-2"> Working with a mentor </a>experienced with Kentucky's Medicaid waiver system, gives you clarity and support to navigate everything from finding the right caregivers to creating a sustainable care plan. It’s about lifting some of the burden off your shoulders so you can breathe easier knowing you’re on the right path.<h3>You Deserve a Plan That Works</h3><figure id="figure-uz6zg8pudm0u9uxet"><img id="uz6zg8pudm0u9uxet" src="https://images.unsplash.com/photo-1706700727696-ff49cbb65ec7?crop=entropy&amp;cs=tinysrgb&amp;fit=max&amp;fm=jpg&amp;ixid=M3wyNjI5NjF8MHwxfHNlYXJjaHw4fHx0ZWVuJTIwd2hlZWxjaGFpcnxlbnwwfHx8fDE3MTgwNzM5NDd8MA&amp;ixlib=rb-4.0.3&amp;q=80&amp;w=1080" alt="a man and a woman walking with a stroller" title="a man and a woman walking with a stroller" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://images.unsplash.com/photo-1706700727696-ff49cbb65ec7?crop=entropy&amp;cs=tinysrgb&amp;fit=max&amp;fm=jpg&amp;ixid=M3wyNjI5NjF8MHwxfHNlYXJjaHw4fHx0ZWVuJTIwd2hlZWxjaGFpcnxlbnwwfHx8fDE3MTgwNzM5NDd8MA&amp;ixlib=rb-4.0.3&amp;q=80&amp;w=1080" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure> When everything feels like it’s constantly shifting, <a data-mce-href="https://sharrisonconsulting.com/consulting-2" href="https://sharrisonconsulting.com/consulting-2">having a clear plan can bring a sense of peace. </a>Whether your child is approaching adulthood, transitioning to a new phase of care, or you’re simply trying to keep things together day by day,&nbsp; you can get support to make a clear plan and next steps to solve problems that you're struggling with.&nbsp;Imagine having a strategy in place that not only supports your child’s needs but gives you the time and energy to focus on being a mom, not just a caregiver.<h3>Resources to Make Your Life Easier</h3><figure id="figure-qy4aiubfemm0u9ydkv"><img id="qy4aiubfemm0u9ydkv" src="https://cdn.durable.co/blocks/9owfXXK48IDlrxUnjh10v8mxAc3m67wEojSeOdSMGMsQNxhkK8PWrj9UT906HOxf.png" alt="person using laptop on white wooden table" title="person using laptop on white wooden table" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: center center;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/9owfXXK48IDlrxUnjh10v8mxAc3m67wEojSeOdSMGMsQNxhkK8PWrj9UT906HOxf.png" data-mce-style="aspect-ratio: 1/1; object-position: center center;"></figure> Late nights spent Googling answers, trying to make sense of forms, or wondering if you’re missing something—those moments are familiar.Check out online resources to cut through the confusion and give you real tools that make a difference.From eBooks that simplify Medicaid waivers to guides that help you hire the right caregivers, these resources are built for moms like you. Moms who are trying to make it all work, even when the system is complicated and overwhelming. These tools are here to give you what you need, exactly when you need it, so you can make informed decisions and move forward with confidence.<h3>You Don’t Have to Do This Alone</h3><figure id="figure-a42whza8z6m0ua0hl2"><img id="a42whza8z6m0ua0hl2" src="https://cdn.durable.co/blocks/eI8ilNgOlSfU4vBtJOPwKWG9eatUJMP51hkPIhfxXmtSqt8CJZxEMIyCYmFTOsI8.jpg" alt="woman standing near wall" title="woman standing near wall" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: 50% 20%;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="50%" data-positiony="20%" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/eI8ilNgOlSfU4vBtJOPwKWG9eatUJMP51hkPIhfxXmtSqt8CJZxEMIyCYmFTOsI8.jpg" data-mce-style="aspect-ratio: 16/9; object-position: 50% 20%;"></figure>The Medicaid waiver waitlist may feel never-ending, but you don’t have to wait to get the help you need. Support is available now—tailored to moms who are doing everything they can for their children.Meet Samantha, and explore how mentoring, consulting, and resources can give you the support and relief you need. Visit <a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">sharrisonconsulting.com</a> to learn more and take the first step toward lightening the load.

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