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<h3>🧩 PDS is complex. Yet, totally worth it.</h3>I’m Samantha Harrison. Behind every Medicaid waiver and disability policy is &nbsp;a family fighting for their loved one’s future. This space is about truth, courage, and clarity—giving you tools, hope, and a steady voice when everything feels like too much.&nbsp;<h3>Even when PDS is working, it doesn’t run itself. And when it’s not working? </h3>Case managers feel it first.Families call in crisis because a staff member quit.Budgets get stuck waiting for one more quote.You’re juggling timelines, approvals, team meetings—and still trying to meet your deadlines.If you’ve ever thought “this takes way more effort than it should (and it’s more than I get paid for)” you’re not wrong.&nbsp;In many states, the Case Management role is separate from the information and assistance role that helps participants make PDS work.&nbsp; <figure id="figure-rnxz7dl8xamaze8v2l"><img id="rnxz7dl8xamaze8v2l" src="https://media.gettyimages.com/id/2180264113/photo/remote-work-online-and-woman-with-laptop-in-cafe-for-email-calendar-update-or-edit-report.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=shvWtMZKg1CTascrNeWF--tHtpuLj2Cx4w7AEcLGrW8=" alt="Remote work, online and woman with laptop in cafe for email, calendar update or edit report. Reading, virtual assistant and African employee for freelance, schedule meeting or booking flight" title="Remote work, online and woman with laptop in cafe for email, calendar update or edit report. Reading, virtual assistant and African employee for freelance, schedule meeting or booking flight" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: undefined undefined;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2180264113/photo/remote-work-online-and-woman-with-laptop-in-cafe-for-email-calendar-update-or-edit-report.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=shvWtMZKg1CTascrNeWF--tHtpuLj2Cx4w7AEcLGrW8=" data-mce-style="aspect-ratio: 16/9; object-position: undefined undefined;"></figure><h3>🛠 The Operational Load Is Real</h3>PDS expects families to become small business owners so that they can have more freedom, flexibility, and control over their care services—but in reality, case managers are often left to:<ul><li>Explain rules that aren’t clearly written</li></ul> <ul><li>Field questions about employer responsibilities</li></ul> <ul><li>Resolve a million HR problems that feel outside of the Case Manager role</li></ul>You’re doing way more than paperwork. You’re holding the system together. <figure id="figure-b9f45y2bimaze9b8s"><img id="b9f45y2bimaze9b8s" src="https://media.gettyimages.com/id/2210369116/photo/serious-thinking-woman-at-workplace-inside-office-businesswoman-preparing-electronic.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=4j_ovzf4C-ZTHMAhOnocIipR6Io8XAdVTiDcVOWtjic=" alt="Serious thinking woman at workplace inside office, businesswoman preparing electronic presentation on laptop, office worker reading financial report online from computer screen" title="Serious thinking woman at workplace inside office, businesswoman preparing electronic presentation on laptop, office worker reading financial report online from computer screen" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2210369116/photo/serious-thinking-woman-at-workplace-inside-office-businesswoman-preparing-electronic.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=4j_ovzf4C-ZTHMAhOnocIipR6Io8XAdVTiDcVOWtjic=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>⚠️ What Makes PDS So Challenging?</h3>Here’s what case managers say makes it tough:Lack of consistent training: Program rules vary by FMS, by region, by interpretation. Families aren’t set up to succeed: They’re told they can hire who they want &nbsp;and told “good luck.” You’re not given the tools: No centralized place for forms, resources, or real-world answers. And yet, you’re still expected to make it work. <figure id="figure-5t3teblbymaze9scx"><img id="5t3teblbymaze9scx" src="https://media.gettyimages.com/id/2184726576/photo/contract-woman-and-advisor-in-office-for-signature-information-or-document-for-job.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=Lue68rZSNRlYwgxG8fYABklvbg6SZPpAcRA8PZ_pKSY=" alt="Contract, woman and advisor in office for signature, information or document for job application. Advice, client or human resource agent with paperwork for registration, opportunity or deal agreement" title="Contract, woman and advisor in office for signature, information or document for job application. Advice, client or human resource agent with paperwork for registration, opportunity or deal agreement" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2184726576/photo/contract-woman-and-advisor-in-office-for-signature-information-or-document-for-job.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=Lue68rZSNRlYwgxG8fYABklvbg6SZPpAcRA8PZ_pKSY=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>✅ So What Can You Do?</h3>You can’t solve every issue—but you can make your day-to-day easier.1) Document what you explain often &nbsp;If you find yourself repeating the same explanation, save it as a script or template. It saves time and keeps your messaging clear. 2) Refer families to mentorship or outside support &nbsp;If a family is in over their head, connect them to education resources or consultants who specialize in PDS. You’re not abandoning them—you’re adding to the team, protecting your time and helping them thrive. 3) Ask for what you need &nbsp;Don’t be afraid to request more clarity, updated training, or better tools. Case managers are the eyes and ears of the system. When you speak up — firmly &amp; kindly — people listen. <figure id="figure-8nx5qxzuwamazea5iu"><img id="8nx5qxzuwamazea5iu" src="https://media.gettyimages.com/id/2205555649/photo/women-talking-at-table-in-office.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=UW574JcKla0nVhMd5ykbA6ctO4C7Fso4-fYej4YmsUQ=" alt="Women talking at table in office" title="Women talking at table in office" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2205555649/photo/women-talking-at-table-in-office.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=UW574JcKla0nVhMd5ykbA6ctO4C7Fso4-fYej4YmsUQ=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>🧠 You Know the System—And Its Gaps</h3>PDS gives people the chance to live on their terms. But only if the professionals involved are supported, too.So here’s your reminder: it’s not your job to do everything. It’s your job to support—and that includes finding support for yourself.Let’s make PDS easier, together. <h3>Meet Samantha&nbsp;</h3>Samantha Harrison is a disability consultant with over 13 years of experience helping Kentucky families navigate Medicaid waivers, hire caregivers through Participant-Directed Services (PDS), and build care steams that actually work.She’s on a mission to help families and case managers who are being left to manage complex systems alone—facing long waitlists, confusing rules, and impossible decisions without enough support. And with new Medicaid cuts looming, the stakes have never been higher.Samantha offers hands-on, personalized support to help families get clear answers, take action, and create sustainable solutions—without getting lost in the red tape. If you’re ready for real help, you’re in the right place.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">Connect with Samantha&nbsp;</a><figure id="figure-qncyf4k8samay23i17"><img id="qncyf4k8samay23i17" src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure>

Why PDS Feels So Hard—and What Case Managers Can Do to Make It Easier

<h3>When graduation hits and there's no plan, no program, and no path—it’s time to create your own.</h3>I’m Samantha Harrison. Behind every Medicaid waiver and disability policy is &nbsp;a family fighting for their loved one’s future. This space is about truth, courage, and clarity—giving you tools, hope, and a steady voice when everything feels like too much.<h3>You got through high school.</h3> IEPs. Transition meetings. All the paperwork.But now it’s over—and there’s nothing lined up.No day program.&nbsp; &nbsp; No job.&nbsp; &nbsp; No plan.Just… empty time.If your young adult doesn’t qualify for—or simply doesn’t want—a traditional day program, you’re not alone.And you’re not without options.<figure id="figure-rnxz7dl8xamaze8v2l"><img id="rnxz7dl8xamaze8v2l" src="https://media.gettyimages.com/id/1405302993/photo/psychomotor-intellectual-disability-girl-doing-her-makeup-at-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=1KEaWjaOlx_3vFO8Sb4ERvNxksEiyL9WSxPG4Lr6hyM=" alt="Psychomotor Intellectual disability girl doing her makeup at home" title="Psychomotor Intellectual disability girl doing her makeup at home" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: undefined undefined;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1405302993/photo/psychomotor-intellectual-disability-girl-doing-her-makeup-at-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=1KEaWjaOlx_3vFO8Sb4ERvNxksEiyL9WSxPG4Lr6hyM=" data-mce-style="aspect-ratio: 16/9; object-position: undefined undefined;"></figure><h3>Why This Happens More Than People Realize</h3>Here’s what I see with so many families after graduation:🧩 The system assumes one path Go to a day training program or stay home. There’s not enough guidance for anything in between.🛑 Eligibility issues pop up Some young adults don’t meet the exact criteria for a program, or they’re placed on a years-long waitlist.😕 The program just doesn’t fit Your young adult might be higher functioning, have specific interests, or feel emotionally unsafe in a group setting.And suddenly, the structured days of school are replaced with… nothing.<figure id="figure-b9f45y2bimaze9b8s"><img id="b9f45y2bimaze9b8s" src="https://media.gettyimages.com/id/958874154/photo/walking-from-the-bus-stop.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=V772-kvpVbSDoZUnxlUdPM1Tc44aZP3PRpczPlkTe3U=" alt="Walking from the Bus Stop" title="Walking from the Bus Stop" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/958874154/photo/walking-from-the-bus-stop.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=V772-kvpVbSDoZUnxlUdPM1Tc44aZP3PRpczPlkTe3U=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>&nbsp;✅ What You Can Do Instead</h3>Here’s how to build a meaningful day—even without a program in place.1. 🧠 Start with their strengths and interests Don’t build around what the system offers. Build around what lights them up. Is it animals? Music? Computers? Physical work?2. 🧑‍🤝‍🧑 Use Participant-Directed Services (PDS) creatively If you have a Medicaid waiver in Kentucky, it's likley that you have the option to recruit, hire, train, and manage your own caregiver instead of using an agency.&nbsp;If you you're waiting for a waiver, &nbsp;you can hire someone privately.&nbsp;Even 2–3 hours a day can provide rhythm and purpose.Hire a support person to help with:<ul><li>Volunteering</li><li>Skill-building</li><li>Social outings</li><li>Learning public transportation</li><li>Following a structured daily routine </li></ul>3. 🗓️ Create a weekly schedule This might include:Mon/Wed: Library or YMCA Tue/Thu: Cooking, community center Fri: Volunteer or family supportEven small blocks of time create structure that prevents isolation and regression. 4. 🧭 Think long-term, but act short-term What you do now sets the tone for years to come. You don’t need a 10-year plan. You need a next step that helps them grow.<figure id="figure-5t3teblbymaze9scx"><img id="5t3teblbymaze9scx" src="https://media.gettyimages.com/id/2154824661/photo/man-and-friend-with-disability-around-the-university.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=43bci6nwUnN2XTG7CvC3RZQCh_yaLMeNyBJRXjbtIQg=" alt="Man and friend with disability around the university" title="Man and friend with disability around the university" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2154824661/photo/man-and-friend-with-disability-around-the-university.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=43bci6nwUnN2XTG7CvC3RZQCh_yaLMeNyBJRXjbtIQg=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Need Help Figuring Out What That Looks Like?</h3>If you’re staring at a blank calendar and wondering how to help your young adult thrive—I can help.I work with families to:✅Build structured schedules using what you do have ✅Tap into Medicaid waivers like PDS ✅Find creative alternatives to day programs ✅Connect with supports that aren’t “cookie-cutter” I have a few&nbsp; free 1:1 strategy sessions open this month for families in this exact situation.👉<a href="https://sharrisonconsulting.com/support-for/life-after-high-school" data-mce-href="https://sharrisonconsulting.com/support-for/life-after-high-school"> Click here to book yours</a>You’re not starting from scratch. You’re starting from experience. Let’s use it.<figure id="figure-8nx5qxzuwamazea5iu"><img id="8nx5qxzuwamazea5iu" src="https://media.gettyimages.com/id/1266254217/photo/group-of-friends-taking-a-stroll-on-citys-street-in-summer-day.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=N2OuSU4ujpO0SztzdRPkiPnYtl11udB2b6u54sPvIWI=" alt="Group of friends taking a stroll on city's street in summer day" title="Group of friends taking a stroll on city's street in summer day" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1266254217/photo/group-of-friends-taking-a-stroll-on-citys-street-in-summer-day.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=N2OuSU4ujpO0SztzdRPkiPnYtl11udB2b6u54sPvIWI=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure> <h3>Meet Samantha&nbsp;</h3>Samantha Harrison is a disability consultant with over 13 years of experience helping Kentucky families navigate Medicaid waivers, hire caregivers through Participant-Directed Services (PDS), and build care steams that actually work.She’s on a mission to help families who are being left to manage complex systems alone—facing long waitlists, confusing rules, and impossible decisions without enough support. And with new Medicaid cuts looming, the stakes have never been higher.Samantha offers hands-on, personalized support to help families get clear answers, take action, and create sustainable solutions—without getting lost in the red tape. If you’re ready for real help, you’re in the right place.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">Connect with Samantha&nbsp;</a><figure id="figure-qncyf4k8samay23i17"><img id="qncyf4k8samay23i17" src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure>

What to Do If Your Young Adult Has No Day Program

<h3>You won’t always be here. And deep down, you already know that.</h3>I’m Samantha Harrison. Behind every Medicaid waiver and disability policy is &nbsp;a family fighting for their loved one’s future. This space is about truth, courage, and clarity—giving you tools, hope, and a steady voice when everything feels like too much.<h3>For decades, you’ve been the one holding it all together.</h3>Coordinating services.&nbsp; &nbsp; Managing medications. Advocating at every meeting, every appointment, every emergency.But your body is slowing down. Your energy is different.And the question starts to whisper louder:“What happens when I can’t keep doing this?”You’re not being dramatic. You’re being responsible. And the earlier you begin this process, the more control and peace of mind you’ll have.<figure id="figure-rnxz7dl8xamaze8v2l"><img id="rnxz7dl8xamaze8v2l" src="https://media.gettyimages.com/id/1164358693/photo/disabled-man-works-in-the-garden.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=SbNnluAwzANvTOyxOvXQ_hVUF4eg3Iz3cZo29z1zxqM=" alt="Disabled man works in the garden" title="Disabled man works in the garden" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: undefined undefined;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1164358693/photo/disabled-man-works-in-the-garden.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=SbNnluAwzANvTOyxOvXQ_hVUF4eg3Iz3cZo29z1zxqM=" data-mce-style="aspect-ratio: 16/9; object-position: undefined undefined;"></figure><h3>Why It’s So Hard to Plan for “After You”</h3>Here’s what I see aging parents struggle with over and over again:💔 It’s painful to imagine your child without you You’ve been their person. Letting go—even a little—feels terrifying. ❓ You’re not sure what’s even available Between Medicaid waivers, guardianship rules, and underfunded services, it’s hard to know what your options really are. 👪 There’s no clear successor Siblings might live far away. Other family members aren’t involved. And outside help feels risky without guidance. 🗂️ No one’s helping you make a plan You’re told to “get something in place,” but what does that mean? A binder? A will? A staff list? A housing program? All of it?<figure id="figure-b9f45y2bimaze9b8s"><img id="b9f45y2bimaze9b8s" src="https://media.gettyimages.com/id/1313401295/photo/adult-man-portrait-with-a-down-syndrome-photo-series.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=nK1MZn6rsYx47jpYxKhl7IgSRVSmwNWL0hk494dEprc=" alt="Adult Man Portrait with a Down Syndrome Photo Series" title="Adult Man Portrait with a Down Syndrome Photo Series" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1313401295/photo/adult-man-portrait-with-a-down-syndrome-photo-series.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=nK1MZn6rsYx47jpYxKhl7IgSRVSmwNWL0hk494dEprc=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>✅ What You Can Do Starting Now</h3>You don’t need the perfect plan. You just need the next right step.1. 🧾 Document what only you know Write down medical routines, agency contacts, staff instructions, communication styles, and what makes your child feel safe. Even 1–2 pages is better than nothing.2. 🧠 Understand what Medicaid waivers actually provide If you’re using a Kentucky waiver, get clear on the services offered—like Participant-Directed Services, respite, or Community Living Supports—and where the gaps will be when you're gone.3. 🧑‍🤝‍🧑 Identify a circle of support—even if it’s small Whether it’s a sibling, a cousin, a neighbor, or a paid staff person, you can start laying a foundation so that someone isn’t starting from scratch in an emergency.4. 📅 Start transition planning while you’re still able to lead it The best transitions happen when you’re there to guide them—before a crisis forces decisions.<figure id="figure-5t3teblbymaze9scx"><img id="5t3teblbymaze9scx" src="https://media.gettyimages.com/id/182507376/photo/mothers-love.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=MCzwWqsWLzMWEENBtNobhGlvukz4wu0hAM690gbP3sE=" alt="Mothers love" title="Mothers love" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/182507376/photo/mothers-love.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=MCzwWqsWLzMWEENBtNobhGlvukz4wu0hAM690gbP3sE=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Start Here — Before the Crisis Hits</h3>If this all feels too heavy to do alone, you don’t have to.I help aging parents:✅&nbsp;Build out a future care strategy that actually fits your child and your family✅&nbsp;Map out roles, supports, and services ✅&nbsp;Create documentation others can actually use Connect with trusted local providers and people &nbsp;I currently have a few strategy sessions available for parents navigating this exact transition.👉 <a data-mce-href="https://sharrisonconsulting.com/support-for/future-planning-disabled-adults-parents" href="https://sharrisonconsulting.com/support-for/future-planning-disabled-adults-parents">Click here to schedule yours</a>You’ve done the hardest work already.Let’s make sure that work lasts—even when you can’t be the one carrying it.<figure id="figure-8nx5qxzuwamazea5iu"><img id="8nx5qxzuwamazea5iu" src="https://media.gettyimages.com/id/2185442370/photo/caretaker-and-sister-taking-care-of-her-middle-aged-brother-who-also-suffers-from-autism.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=QMq4FYPzxX5lH8ANezVSq52nPq8VKzG7laIW4H9tF7o=" alt="Caretaker and sister taking care of her middle aged brother who also suffers from autism." title="Caretaker and sister taking care of her middle aged brother who also suffers from autism." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2185442370/photo/caretaker-and-sister-taking-care-of-her-middle-aged-brother-who-also-suffers-from-autism.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=QMq4FYPzxX5lH8ANezVSq52nPq8VKzG7laIW4H9tF7o=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure> <h3>Meet Samantha&nbsp;</h3>Samantha Harrison is a disability consultant with over 13 years of experience helping Kentucky families navigate Medicaid waivers, hire caregivers through Participant-Directed Services (PDS), and build care steams that actually work.She’s on a mission to help families who are being left to manage complex systems alone—facing long waitlists, confusing rules, and impossible decisions without enough support. And with new Medicaid cuts looming, the stakes have never been higher.Samantha offers hands-on, personalized support to help families get clear answers, take action, and create sustainable solutions—without getting lost in the red tape. If you’re ready for real help, you’re in the right place.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">Connect with Samantha&nbsp;</a><figure id="figure-qncyf4k8samay23i17"><img id="qncyf4k8samay23i17" src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure>

What Happens When You Can’t Be the Caregiver Anymore?

<h3>High school isn’t the finish line. It’s the start of an overwhelming new chapter for families of young adults with disabilities.</h3>I’m Samantha Harrison. Behind every Medicaid waiver and disability policy is &nbsp;a family fighting for their loved one’s future. This space is about truth, courage, and clarity—giving you tools, hope, and a steady voice when everything feels like too much.<h3>You spend years fighting for IEPs, therapies, and transition plans.</h3> And then—just like that—graduation hits.Suddenly, there’s no classroom. No clear routine. No built-in supports. And you’re left asking:“Now what?”For many families, life after high school for a young adult with disabilities brings more questions than answers.Where will they go each day? What programs are available? Will they be stuck at home while peers move on?Let’s talk about what comes next—and how to build a life that actually works.<figure id="figure-rnxz7dl8xamaze8v2l"><img id="rnxz7dl8xamaze8v2l" src="https://media.gettyimages.com/id/1947153227/photo/portrait-of-a-happy-disabled-man-at-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=UJrfrHmrA439bzHI06KKsV51GP4amRoPLCCOSnpsmmQ=" alt="Portrait of a happy disabled man at home" title="Portrait of a happy disabled man at home" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1947153227/photo/portrait-of-a-happy-disabled-man-at-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=UJrfrHmrA439bzHI06KKsV51GP4amRoPLCCOSnpsmmQ=" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure><h3>What Happens to Too Many Young Adults After Graduation</h3>Without a clear plan, this is what I see over and over again:🛋️ They stay home all day — with no routine, no connection, and no growth💸 Families burn out fast — trying to juggle caregiving and full-time work🧩 Supports go underused — because no one explained how to access or combine them📉 Skills they built in school begin to fade — because there’s no consistent practiceIt doesn’t have to be this way. But the system doesn’t make it easy.<figure id="figure-b9f45y2bimaze9b8s"><img id="b9f45y2bimaze9b8s" src="https://media.gettyimages.com/id/2053448841/photo/disabled-man-happy-while-painting-on-canvas.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=zPw2wkFndEgixHi6rea8kHNqz-kIQsiHyFqd1C_ee6E=" alt="Disabled man happy while painting on canvas" title="Disabled man happy while painting on canvas" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2053448841/photo/disabled-man-happy-while-painting-on-canvas.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=zPw2wkFndEgixHi6rea8kHNqz-kIQsiHyFqd1C_ee6E=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>What You Can Do After High School Ends</h3>There’s no one-size-fits-all path—but there are options. Here’s where to begin:1. 🔍 Get clear on what’s available From waiver programs and adult day services to supported employment or college transition programs—Kentucky has options. But most families don’t hear about them until years too late.2. 📋 Start with your young adult’s vision, not just the system’s limitations Do they want to work? Be around people? Live more independently someday? You’re not just filling time—you’re building a life. Start from what matters most.3. 🧑‍🤝‍🧑 Consider Participant-Directed Services (PDS) If traditional day programs don’t fit, PDS might. It allows families to hire their own staff, build a schedule that works, and create opportunities around real goals—not cookie-cutter programs.4. 🧠 Think beyond 1 year at a time What you do today shapes what’s possible 5 years from now. That doesn’t mean rushing—but it does mean being intentional.<figure id="figure-5t3teblbymaze9scx"><img id="5t3teblbymaze9scx" src="https://media.gettyimages.com/id/1347212805/photo/young-man-with-down-syndrome-with-his-mentoring-friend-sitting-outdoors-in-cafe-using-laptop.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=7HToIxPcKmG6AYHKZ1jqsEu6JLlkLSE5zkqlUlrWQB4=" alt="Young man with Down syndrome with his mentoring friend sitting outdoors in cafe using laptop." title="Young man with Down syndrome with his mentoring friend sitting outdoors in cafe using laptop." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1347212805/photo/young-man-with-down-syndrome-with-his-mentoring-friend-sitting-outdoors-in-cafe-using-laptop.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=7HToIxPcKmG6AYHKZ1jqsEu6JLlkLSE5zkqlUlrWQB4=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>✅ Start Here — You Don’t Have to Navigate This Alone</h3>You don’t have to figure it all out today. But you can take the next step forward.I work with families to create customized post-graduation roadmaps that focus on:🎯 Meaningful daily routines💼 Opportunities for growth, work, and contribution🏡 Long-term care planning🧾 Getting the right services without getting lost in the system I have a few openings for free strategy sessions with families navigating this exact transition.👉<a data-mce-href="https://sharrisonconsulting.com/support-for/life-after-high-school" href="https://sharrisonconsulting.com/support-for/life-after-high-school"> Click here to schedule your session.</a><figure id="figure-fs2x2ov7xmazf24b5"><img id="fs2x2ov7xmazf24b5" src="https://media.gettyimages.com/id/1491249590/photo/two-friends-a-young-woman-and-man-with-down-syndrom-hiking-together-in-the-forest.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=s6vsqE2JVqBsv-bMhL-6BZLbDXynFcOY5ItuRDyrS1E=" alt="Two friends, a young woman and man with Down syndrom, hiking together in the forest" title="Two friends, a young woman and man with Down syndrom, hiking together in the forest" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1491249590/photo/two-friends-a-young-woman-and-man-with-down-syndrom-hiking-together-in-the-forest.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=s6vsqE2JVqBsv-bMhL-6BZLbDXynFcOY5ItuRDyrS1E=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Meet Samantha&nbsp;</h3>Samantha Harrison is a disability consultant with over 13 years of experience helping Kentucky families navigate Medicaid waivers, hire caregivers through Participant-Directed Services (PDS), and build care steams that actually work.She’s on a mission to help families who are being left to manage complex systems alone—facing long waitlists, confusing rules, and impossible decisions without enough support. And with new Medicaid cuts looming, the stakes have never been higher.Samantha offers hands-on, personalized support to help families get clear answers, take action, and create sustainable solutions—without getting lost in the red tape. If you’re ready for real help, you’re in the right place.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">Connect with Samantha&nbsp;</a><figure id="figure-qncyf4k8samay23i17"><img id="qncyf4k8samay23i17" src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure>

After Graduation: Building a Life That Works

<h3>Hiring people to help special needs adult, child, or sibling shouldn’t feel like shouting into the void.</h3>﻿I’m Samantha Harrison. Behind every Medicaid waiver and disability policy is &nbsp;a family fighting for their loved one’s future. This space is about truth, courage, and clarity—giving you tools, hope, and a steady voice when everything feels like too much. <h3>But for many families, that’s exactly what it is.</h3>Flyers.&nbsp; &nbsp;Job boards.&nbsp; &nbsp;Facebook posts.You’ve probably tried all of them—and still, no one shows up. Or they come once, and never return.It’s one of the most frustrating parts of finding support for adults with disabilites whether you're hiring privately, or using Participant-Directed Services (PDS).&nbsp;And yet, families are expected to recruit, interview, and train staff like a seasoned hiring manager… without ever being shown how.If you're stuck wondering why your caregiver job post isn’t getting any bites, this article is for you.<figure id="figure-rnxz7dl8xamaze8v2l"><img id="rnxz7dl8xamaze8v2l" src="https://media.gettyimages.com/id/522147946/photo/teenage-girl-with-downs-syndrome-grandmother-outdoors.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=Sumet7yguF9_sbOfKvsLIMs7Xs1kxodzDXKTdrmQgg8=" alt="Teenage girl with downs syndrome, grandmother outdoors" title="Teenage girl with downs syndrome, grandmother outdoors" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: undefined undefined;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/522147946/photo/teenage-girl-with-downs-syndrome-grandmother-outdoors.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=Sumet7yguF9_sbOfKvsLIMs7Xs1kxodzDXKTdrmQgg8=" data-mce-style="aspect-ratio: 16/9; object-position: undefined undefined;"></figure><h3>Common Reasons Families Struggle to Hire Caregivers</h3>Here’s what I see over and over again:🗒️ Job descriptions are too vague (or too clinical) Using terms like “DSP,” “ADLs,” or “behavior support” without context can scare off great candidates who just need plain language. 🌐 You're relying on the wrong platforms Indeed, Facebook, and Nextdoor can help—but not without a strategy. Most families post once and hope for magic. That rarely works. 💰Pay is low, but the expectations are high Caregivers are often asked to manage medication, transportation, behavior, and more—for wages that rival fast food. The result? High turnover and low trust. 🔄 There’s no clear system for interviewing or training Even if someone good applies, the process often falls apart after the first conversation. Without a simple, repeatable system, good candidates slip through the cracks.<figure id="figure-b9f45y2bimaze9b8s"><img id="b9f45y2bimaze9b8s" src="https://media.gettyimages.com/id/1137349628/photo/teenage-girl-in-wheelchair-looking-at-mobile-phone-with-friend-in-park.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=C7Ntr9WM2rs1uDKAkWcLguIX7g_Wtddv3GUx8w5h52w=" alt="Teenage Girl In Wheelchair Looking At Mobile Phone With Friend In Park" title="Teenage Girl In Wheelchair Looking At Mobile Phone With Friend In Park" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1137349628/photo/teenage-girl-in-wheelchair-looking-at-mobile-phone-with-friend-in-park.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=C7Ntr9WM2rs1uDKAkWcLguIX7g_Wtddv3GUx8w5h52w=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>What to Do Differently</h3>Finding a caregiver that's a good fit for your family is far more than a single job post. You need a process.1. Write job ads like you're talking to a real person “We’re looking for someone who’s calm, kind, and dependable. You’ll help a young man with disabilities live a full, meaningful life at home and in the community.” 2. Use simple language—and visual storytelling Include a photo (with permission), describe the personality fit, and give examples of what the day-to-day looks like.3. Have a 3-question screening tool “What makes this kind of work meaningful for you?” “Are you comfortable helping with personal care?” “Do you prefer a routine or variety in your day?” 4. Support your caregivers early and often Clear expectations, check-ins, and a short onboarding can make the difference between someone staying 3 days or 3 years.<figure id="figure-5t3teblbymaze9scx"><img id="5t3teblbymaze9scx" src="https://media.gettyimages.com/id/1140069073/photo/sister-pushing-disabled-little-brother-in-wheelchair-around-neighborhood.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=Nef6989kIW54l5WP3lzHZYxFAQzmtCmFrfyjn6aXgbI=" alt="Sister pushing disabled little brother in wheelchair around neighborhood" title="Sister pushing disabled little brother in wheelchair around neighborhood" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: center center;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1140069073/photo/sister-pushing-disabled-little-brother-in-wheelchair-around-neighborhood.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=Nef6989kIW54l5WP3lzHZYxFAQzmtCmFrfyjn6aXgbI=" data-mce-style="aspect-ratio: 1/1; object-position: center center;"></figure><h3>Need Help Hiring a Caregiver? Start Here</h3>Hiring caregivers through Participant-Directed Services doesn’t have to feel like guesswork.I help families:Write job descriptions that actually attract applicants Set up screening tools to save time Understand how to compete even with lower pay Build teams that last &nbsp;I have a few openings for free strategy sessions sepficially families who are currently hiring or plan to hire caregivers and need a strategy that works.👉<a data-mce-href="https://sharrisonconsulting.com/support-for/find-a-caregiver" href="https://sharrisonconsulting.com/support-for/find-a-caregiver"> Click here to schedule your 1:1 session</a><figure id="figure-8nx5qxzuwamazea5iu"><img id="8nx5qxzuwamazea5iu" src="https://media.gettyimages.com/id/1347212805/photo/young-man-with-down-syndrome-with-his-mentoring-friend-sitting-outdoors-in-cafe-using-laptop.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=7HToIxPcKmG6AYHKZ1jqsEu6JLlkLSE5zkqlUlrWQB4=" alt="Young man with Down syndrome with his mentoring friend sitting outdoors in cafe using laptop." title="Young man with Down syndrome with his mentoring friend sitting outdoors in cafe using laptop." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1347212805/photo/young-man-with-down-syndrome-with-his-mentoring-friend-sitting-outdoors-in-cafe-using-laptop.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=7HToIxPcKmG6AYHKZ1jqsEu6JLlkLSE5zkqlUlrWQB4=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><figure id="figure-5ngsqsvzimazeb7ya" class=""></figure><h3>Meet Samantha&nbsp;</h3>Samantha Harrison is a disability consultant with over 13 years of experience helping Kentucky families navigate Medicaid waivers, hire caregivers through Participant-Directed Services (PDS), and build care steams that actually work.She’s on a mission to help families who are being left to manage complex systems alone—facing long waitlists, confusing rules, and impossible decisions without enough support. And with new Medicaid cuts looming, the stakes have never been higher.Samantha offers hands-on, personalized support to help families get clear answers, take action, and create sustainable solutions—without getting lost in the red tape. If you’re ready for real help, you’re in the right place.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">Connect with Samantha&nbsp;</a><figure id="figure-qncyf4k8samay23i17" class=""><img id="qncyf4k8samay23i17" src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure>

Why You’re Not Finding Good Caregivers (And What to Do)

<h3>When parents age—or pass away—there’s often no formal transition plan for who takes over care.</h3>I’m Samantha Harrison. Behind every Medicaid waiver and disability policy is &nbsp;a family fighting for their loved one’s future. This space is about truth, courage, and clarity—giving you tools, hope, and a steady voice when everything feels like too much.<h3>For many families, it's the sibling who steps in.&nbsp;</h3><ul><li>Not because you asked for it.</li><li>Not because you're the best fit.</li><li>But because you were next in line, and no one else stepped up.</li></ul>Suddenly, you're in charge of medical decisions, housing, benefits, staffing, and day-to-day care. All while juggling your own life, job, and family.It’s a massive responsibility. And you’re not alone if you feel completely unprepared.<figure id="figure-ey0lw4mbkmay5iqqg" class=""><img id="ey0lw4mbkmay5iqqg" src="https://media.gettyimages.com/id/1418493553/photo/portrait-of-happy-young-man-with-down-syndrome-with-his-mother-sitting-at-cafe-outdoors-and.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=ToWYQNKfKHbB5ljBggFE1Qp3bJe7DIfRNhTmDuOd6QQ=" alt="Portrait of happy young man with Down syndrome with his mother sitting at cafe outdoors and talking." title="Portrait of happy young man with Down syndrome with his mother sitting at cafe outdoors and talking." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1418493553/photo/portrait-of-happy-young-man-with-down-syndrome-with-his-mother-sitting-at-cafe-outdoors-and.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=ToWYQNKfKHbB5ljBggFE1Qp3bJe7DIfRNhTmDuOd6QQ=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>The Emotional Whiplash of Becoming “The One”</h3>Many siblings describe this moment as overwhelming, isolating, or even guilt-inducing. Some common thoughts I hear:“I love my brother, but I don’t know how to be his caregiver.”“I’m terrified I’ll make the wrong decision.”“I don’t want to live my life with resentment—or regret.”Even when families are close, this shift can bring up buried emotions, family conflict, or unresolved trauma. It’s a lot.But there is a way to do this with more clarity and less chaos.<figure id="figure-69demg6wqbmay2gomp"><img id="69demg6wqbmay2gomp" src="https://media.gettyimages.com/id/973216438/photo/senior-men-at-nature.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=PmEIRM_GtEMTGpMd7OrXZVI71hOAF07faf4vaKHMVIg=" alt="senior men at nature" title="senior men at nature" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/973216438/photo/senior-men-at-nature.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=PmEIRM_GtEMTGpMd7OrXZVI71hOAF07faf4vaKHMVIg=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>💡 &nbsp;Step One: Get the Lay of the Land</h3>Before you dive in, take a moment to step back and assess:<ul><li>Is there a Medicaid waiver or other benefit in place?</li><li>Has anyone documented care routines, medications, or preferences?</li><li>Are there guardianship or legal documents already set up?</li><li>What supports are being paid for—and which ones are provided by family?</li></ul> If the answer to most of these is “I don’t know”&nbsp; that’s okay. Most siblings are thrown in without a map. That’s where planning support comes in.<figure id="figure-dhfzskpzmmay2guh3"><img id="dhfzskpzmmay2guh3" src="https://media.gettyimages.com/id/1164358693/photo/disabled-man-works-in-the-garden.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=SbNnluAwzANvTOyxOvXQ_hVUF4eg3Iz3cZo29z1zxqM=" alt="Disabled man works in the garden" title="Disabled man works in the garden" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1164358693/photo/disabled-man-works-in-the-garden.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=SbNnluAwzANvTOyxOvXQ_hVUF4eg3Iz3cZo29z1zxqM=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Step Two: Build a Support Team</h3>You shouldn’t have to do this alone.Your first move isn’t to “fix everything.” It’s to build a circle of support. That might include:<ul><li>A disability consultant who can walk you through what’s available</li><li>A case manager who knows the waiver system</li><li>Other family members or trusted people who can help share the load</li><li>A legal or financial advisor if guardianship or trust questions come up</li></ul> The goal isn’t to become the expert—it’s to build a structure that doesn’t rely entirely on you. <figure id="figure-mzi2p4e5wtmay2gz1z"><img id="mzi2p4e5wtmay2gz1z" src="https://media.gettyimages.com/id/2169337548/photo/gentle-touch-of-married-couple-hands-man-with-disability-and-his-wife.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=J0VgYa7dz8BFy2vpdY4-SpaaiJjDP-fhdSgFyVUUyJM=" alt="Gentle touch of married couple hands, man with disability and his wife" title="Gentle touch of married couple hands, man with disability and his wife" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: center center;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2169337548/photo/gentle-touch-of-married-couple-hands-man-with-disability-and-his-wife.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=J0VgYa7dz8BFy2vpdY4-SpaaiJjDP-fhdSgFyVUUyJM=" data-mce-style="aspect-ratio: 1/1; object-position: center center;"></figure><h3>Step Three: Create a Realistic Game Plan</h3>You don’t need a perfect plan. But you do need a next step.Maybe that’s starting the Medicaid application.Maybe it’s documenting care routines and contact info.Maybe it’s just figuring out what supports are already in place.Every family is different. <figure id="figure-4rw1v89z6gmay4n0ak"><img id="4rw1v89z6gmay4n0ak" src="https://media.gettyimages.com/id/2173223092/photo/african-american-seniors-man-in-wheelchair-play-bocce-ball.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=tPaKIbv0qPtDuoTXtPtGoR2zcwlRt_hKKKmq6RauY60=" alt="African-American seniors, man in wheelchair play bocce ball" title="African-American seniors, man in wheelchair play bocce ball" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2173223092/photo/african-american-seniors-man-in-wheelchair-play-bocce-ball.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=tPaKIbv0qPtDuoTXtPtGoR2zcwlRt_hKKKmq6RauY60=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>✅ Start Here — Get the Support You Deserve</h3> If you’ve just found yourself in the role of “default caregiver,” you’re not failing. You’re adapting to something big—and you deserve real support.I work with siblings who want to do this well, without losing themselves in the process.📅 I have openings this month for 1:1 strategy sessions focused on sibling caregiving transitions. 👉<a data-mce-href="https://sharrisonconsulting.com/support-for/sibling-caregivers" href="https://sharrisonconsulting.com/support-for/sibling-caregivers"> Click here to schedule yours</a>You don’t have to figure it all out today. You just have to start.<figure id="figure-3unvloxjwrmay5kzid"><img id="3unvloxjwrmay5kzid" src="https://media.gettyimages.com/id/1391247384/photo/mature-adult-female-sits-next-to-her-autistic-brother.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=VUV8cscv0z5_QQGOK1MlRVbUwQPp6Ykbw_nBcMdtzqo=" alt="Mature adult female sits next to her Autistic brother" title="Mature adult female sits next to her Autistic brother" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1391247384/photo/mature-adult-female-sits-next-to-her-autistic-brother.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=VUV8cscv0z5_QQGOK1MlRVbUwQPp6Ykbw_nBcMdtzqo=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Meet Samantha&nbsp;</h3>Samantha Harrison is a disability consultant with over 13 years of experience helping Kentucky families navigate Medicaid waivers, hire caregivers through Participant-Directed Services (PDS), and build care steams that actually work.She’s on a mission to help families who are being left to manage complex systems alone—facing long waitlists, confusing rules, and impossible decisions without enough support. And with new Medicaid cuts looming, the stakes have never been higher.Samantha offers hands-on, personalized support to help families get clear answers, take action, and create sustainable solutions—without getting lost in the red tape. If you’re ready for real help, you’re in the right place.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">Connect with Samantha&nbsp;</a><figure id="figure-qncyf4k8samay23i17" class=""><img id="qncyf4k8samay23i17" src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure>

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