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<h3>When parents age—or pass away—there’s often no formal transition plan for who takes over care.</h3>And for many families, it lands on a sibling.<ul><li>Not because they asked for it.</li><li>Not because they’re the best fit.</li><li>But because they were next in line, and no one else stepped up.</li></ul>Suddenly, you're in charge of medical decisions, housing, benefits, staffing, and day-to-day care. All while juggling your own life, job, and family.It’s a massive responsibility. And you’re not alone if you feel completely unprepared.<figure id="figure-ey0lw4mbkmay5iqqg"><img id="ey0lw4mbkmay5iqqg" src="https://media.gettyimages.com/id/1418493553/photo/portrait-of-happy-young-man-with-down-syndrome-with-his-mother-sitting-at-cafe-outdoors-and.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=ToWYQNKfKHbB5ljBggFE1Qp3bJe7DIfRNhTmDuOd6QQ=" alt="Portrait of happy young man with Down syndrome with his mother sitting at cafe outdoors and talking." title="Portrait of happy young man with Down syndrome with his mother sitting at cafe outdoors and talking." class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1418493553/photo/portrait-of-happy-young-man-with-down-syndrome-with-his-mother-sitting-at-cafe-outdoors-and.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=ToWYQNKfKHbB5ljBggFE1Qp3bJe7DIfRNhTmDuOd6QQ=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>The Emotional Whiplash of Becoming “The One”</h3>Many siblings describe this moment as overwhelming, isolating, or even guilt-inducing. Some common thoughts I hear:“I love my brother, but I don’t know how to be his caregiver.”“I’m terrified I’ll make the wrong decision.”“I don’t want to live my life with resentment—or regret.”Even when families are close, this shift can bring up buried emotions, family conflict, or unresolved trauma. It’s a lot.But there is a way to do this with more clarity and less chaos.<figure id="figure-69demg6wqbmay2gomp"><img id="69demg6wqbmay2gomp" src="https://media.gettyimages.com/id/973216438/photo/senior-men-at-nature.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=PmEIRM_GtEMTGpMd7OrXZVI71hOAF07faf4vaKHMVIg=" alt="senior men at nature" title="senior men at nature" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/973216438/photo/senior-men-at-nature.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=PmEIRM_GtEMTGpMd7OrXZVI71hOAF07faf4vaKHMVIg=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>💡 &nbsp;Step One: Get the Lay of the Land</h3>Before you dive in, take a moment to step back and assess:<ul><li>Is there a Medicaid waiver or other benefit in place?</li><li>Has anyone documented care routines, medications, or preferences?</li><li>Are there guardianship or legal documents already set up?</li><li>What supports are being paid for—and which ones are provided by family?</li></ul> If the answer to most of these is “I don’t know”&nbsp; that’s okay. Most siblings are thrown in without a map. That’s where planning support comes in.<figure id="figure-dhfzskpzmmay2guh3"><img id="dhfzskpzmmay2guh3" src="https://media.gettyimages.com/id/1164358693/photo/disabled-man-works-in-the-garden.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=SbNnluAwzANvTOyxOvXQ_hVUF4eg3Iz3cZo29z1zxqM=" alt="Disabled man works in the garden" title="Disabled man works in the garden" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1164358693/photo/disabled-man-works-in-the-garden.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=SbNnluAwzANvTOyxOvXQ_hVUF4eg3Iz3cZo29z1zxqM=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Step Two: Build a Support Team</h3>You shouldn’t have to do this alone.Your first move isn’t to “fix everything.” It’s to build a circle of support. That might include:<ul><li>A disability consultant who can walk you through what’s available</li><li>A case manager who knows the waiver system</li><li>Other family members or trusted people who can help share the load</li><li>A legal or financial advisor if guardianship or trust questions come up</li></ul> The goal isn’t to become the expert—it’s to build a structure that doesn’t rely entirely on you. <figure id="figure-mzi2p4e5wtmay2gz1z"><img id="mzi2p4e5wtmay2gz1z" src="https://media.gettyimages.com/id/2169337548/photo/gentle-touch-of-married-couple-hands-man-with-disability-and-his-wife.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=J0VgYa7dz8BFy2vpdY4-SpaaiJjDP-fhdSgFyVUUyJM=" alt="Gentle touch of married couple hands, man with disability and his wife" title="Gentle touch of married couple hands, man with disability and his wife" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: center center;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2169337548/photo/gentle-touch-of-married-couple-hands-man-with-disability-and-his-wife.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=J0VgYa7dz8BFy2vpdY4-SpaaiJjDP-fhdSgFyVUUyJM=" data-mce-style="aspect-ratio: 1/1; object-position: center center;"></figure><h3>Step Three: Create a Realistic Game Plan</h3>You don’t need a perfect plan. But you do need a next step.Maybe that’s starting the Medicaid application. Maybe it’s documenting care routines and contact info. Maybe it’s just figuring out what supports are already in place.Every family is different. I work with siblings to build realistic care transition plans that match your life, not just the system’s expectations.<figure id="figure-4rw1v89z6gmay4n0ak"><img id="4rw1v89z6gmay4n0ak" src="https://media.gettyimages.com/id/2173223092/photo/african-american-seniors-man-in-wheelchair-play-bocce-ball.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=tPaKIbv0qPtDuoTXtPtGoR2zcwlRt_hKKKmq6RauY60=" alt="African-American seniors, man in wheelchair play bocce ball" title="African-American seniors, man in wheelchair play bocce ball" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2173223092/photo/african-american-seniors-man-in-wheelchair-play-bocce-ball.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=tPaKIbv0qPtDuoTXtPtGoR2zcwlRt_hKKKmq6RauY60=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>✅ Start Here — Get the Support You Deserve</h3> If you’ve just found yourself in the role of “default caregiver,” you’re not failing. You’re adapting to something big—and you deserve real support.I work with siblings who want to do this well, without losing themselves in the process.📅 I have openings this month for 1:1 strategy sessions focused on sibling caregiving transitions. <a data-mce-href="https://sharrisonconsulting.com/support-for/sibling-caregivers" href="https://sharrisonconsulting.com/support-for/sibling-caregivers" data-mce-selected="inline-boundary">👉 Click here to schedule yours.</a>You don’t have to figure it all out today. You just have to start.<figure id="figure-3unvloxjwrmay5kzid"><img id="3unvloxjwrmay5kzid" src="https://media.gettyimages.com/id/1391247384/photo/mature-adult-female-sits-next-to-her-autistic-brother.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=VUV8cscv0z5_QQGOK1MlRVbUwQPp6Ykbw_nBcMdtzqo=" alt="Mature adult female sits next to her Autistic brother" title="Mature adult female sits next to her Autistic brother" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1391247384/photo/mature-adult-female-sits-next-to-her-autistic-brother.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=VUV8cscv0z5_QQGOK1MlRVbUwQPp6Ykbw_nBcMdtzqo=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Meet Samantha&nbsp;</h3>Samantha Harrison is a disability consultant with over 13 years of experience helping Kentucky families navigate Medicaid waivers, hire caregivers through Participant-Directed Services (PDS), and build care steams that actually work.She’s on a mission to help families who are being left to manage complex systems alone—facing long waitlists, confusing rules, and impossible decisions without enough support. And with new Medicaid cuts looming, the stakes have never been higher.Samantha offers hands-on, personalized support to help families get clear answers, take action, and create sustainable solutions—without getting lost in the red tape. If you’re ready for real help, you’re in the right place.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">Connect with Samantha&nbsp;</a><figure id="figure-qncyf4k8samay23i17"><img id="qncyf4k8samay23i17" src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure>

When It Lands on You: Sibling Caregiving Realities

<h3>You Won’t Be Here Forever. And You Know It.</h3>A mother in her seventies called me last week. She’s been caring for her adult son with disabilities his whole life.But now, her own health is changing. And she’s terrified.She told me...<blockquote>I thought I had more time. But my body is saying otherwise.</blockquote>She has no idea who will step in. Her other children live far away. She doesn’t know what services are available, who to call, or how to even begin.<figure id="figure-mjhru899womay2gjdl"><img id="mjhru899womay2gjdl" src="https://media.gettyimages.com/id/1313401233/photo/adult-man-portrait-with-a-down-syndrome-photo-series.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=4s2237JQ9EuBK_vOwU3ui0YsyG1X5Jwy4KXtcv6mxhw=" alt="Adult Man Portrait with a Down Syndrome Photo Series" title="Adult Man Portrait with a Down Syndrome Photo Series" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1313401233/photo/adult-man-portrait-with-a-down-syndrome-photo-series.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=4s2237JQ9EuBK_vOwU3ui0YsyG1X5Jwy4KXtcv6mxhw=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Here’s the truth:</h3>There’s no emergency system that automatically picks up where you left off with managing, paperwork, daily care, or long-term needs.It falls on whoever is left.Usually a sibling. A niece. Or no one.👉 That’s why I help families prepare before a crisis hits. <figure id="figure-69demg6wqbmay2gomp"><img id="69demg6wqbmay2gomp" src="https://media.gettyimages.com/id/1405303816/photo/portrait-of-father-and-psychomotor-intellectual-disability-daughter-sitting-on-the-sofa-at.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=y_9PKgoOFfFanV_xY_AuyVKx8UUMoPn-mXUXozkMrkg=" alt="Portrait of father and psychomotor Intellectual disability daughter sitting on the sofa at home" title="Portrait of father and psychomotor Intellectual disability daughter sitting on the sofa at home" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1405303816/photo/portrait-of-father-and-psychomotor-intellectual-disability-daughter-sitting-on-the-sofa-at.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=y_9PKgoOFfFanV_xY_AuyVKx8UUMoPn-mXUXozkMrkg=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>💡 What We Can Do Together</h3> Whether you're just starting to think about the future or already facing the signs that it's time to prepare, here's what we’ll tackle in our session:<ul><li>Identify who could step in and how to prepare them</li><li>Outline what Medicaid services can and cannot do</li><li>Build a written roadmap that brings peace of mind</li><li>Explore alternatives that protect your loved one’s future</li><li>Take small steps that make a huge difference later</li></ul><figure id="figure-dhfzskpzmmay2guh3"><img id="dhfzskpzmmay2guh3" src="https://media.gettyimages.com/id/1164358693/photo/disabled-man-works-in-the-garden.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=SbNnluAwzANvTOyxOvXQ_hVUF4eg3Iz3cZo29z1zxqM=" alt="Disabled man works in the garden" title="Disabled man works in the garden" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1164358693/photo/disabled-man-works-in-the-garden.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=SbNnluAwzANvTOyxOvXQ_hVUF4eg3Iz3cZo29z1zxqM=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>✅ Start Here — Your First Step Matters</h3> I offer a focused session just for aging parents ready to face the future with clarity and a plan.📅 I have 2 openings this month for private strategy sessions.&nbsp;👉<a data-mce-href="https://sharrisonconsulting.com/support-for/future-planning-disabled-adults-parents" href="https://sharrisonconsulting.com/support-for/future-planning-disabled-adults-parents"> Click here to schedule yours.</a>You don’t have to figure this out alone. You just have to start. <figure id="figure-mzi2p4e5wtmay2gz1z"><img id="mzi2p4e5wtmay2gz1z" src="https://media.gettyimages.com/id/1312864140/photo/autistic-man-and-caretaker.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=G8qgXtphlmnlBGh99QVhpwKHC6NFIfAclEpIxttaFiI=" alt="Autistic man and caretaker" title="Autistic man and caretaker" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: center center;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1312864140/photo/autistic-man-and-caretaker.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=G8qgXtphlmnlBGh99QVhpwKHC6NFIfAclEpIxttaFiI=" data-mce-style="aspect-ratio: 1/1; object-position: center center;"></figure> Meet Samantha&nbsp;Samantha Harrison is a disability consultant with over 13 years of experience helping Kentucky families navigate Medicaid waivers, hire caregivers through Participant-Directed Services (PDS), and build care steams that actually work.She’s on a mission to help families who are being left to manage complex systems alone—facing long waitlists, confusing rules, and impossible decisions without enough support. And with new Medicaid cuts looming, the stakes have never been higher.Samantha offers hands-on, personalized support to help families get clear answers, take action, and create sustainable solutions—without getting lost in the red tape. If you’re ready for real help, you’re in the right place.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">Connect with Samantha&nbsp;</a><figure id="figure-qncyf4k8samay23i17"><img id="qncyf4k8samay23i17" src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/24lyCDqnRLPMXuzc4uXRPnQSR8r4sGbnZ6rEygCJNPfpnncSXymwjpAt5XzUPYL8.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure>

You Won’t Be Here Forever. And You Know It.

Life Support Is Failing: The Medicaid Crisis Already Affects Everyone You Know

For many adults with developmental disabilities, parents are more than just family—they are caregivers, advocates, and the foundation of daily life. But what happens when they’re gone?For siblings, extended family, and close friends stepping into a caregiving role, this transition can feel overwhelming. Questions about housing, daily support, medical care, and long-term planning can arise all at once. Unfortunately, many families find themselves navigating this process during a crisis, without clear guidance on where to turn.If you are in this situation—or know someone who is—you are not alone. There are resources and support systems available to help.<h3> </h3><figure id="figure-355ck5b86im8d984l6"><img id="355ck5b86im8d984l6" src="https://media.gettyimages.com/id/2185442410/photo/sister-and-brother-with-autism.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=gZBZUu92csTRMYjWgT8bEgO6Ln-2qg0XlsVJUuVSy4k=" alt="Sister and brother with Autism" title="Sister and brother with Autism" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2185442410/photo/sister-and-brother-with-autism.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=gZBZUu92csTRMYjWgT8bEgO6Ln-2qg0XlsVJUuVSy4k=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> The Biggest Challenges Families Face</h3> When a parent who has been the primary caregiver passes away or becomes unable to provide care, their adult child may suddenly face:🔹 Uncertainty about where to live – Can they stay in the family home? If not, what are the options? 🔹 Loss of daily support – Who will assist with personal care, transportation, and decision-making? 🔹 Changes in services and benefits – How do they maintain Medicaid services and other supports? 🔹 The emotional impact of losing their strongest advocate – Who will step in to help navigate the system?These challenges can feel overwhelming, especially when combined with the grief and stress of losing a loved one. The good news is that there are systems in place to help individuals maintain stability and independence—but knowing how to access them is key.&nbsp;<figure id="figure-8bs3hrycjm8d987kp"><img id="8bs3hrycjm8d987kp" src="https://media.gettyimages.com/id/2173223092/photo/african-american-seniors-man-in-wheelchair-play-bocce-ball.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=tPaKIbv0qPtDuoTXtPtGoR2zcwlRt_hKKKmq6RauY60=" alt="African-American seniors, man in wheelchair play bocce ball" title="African-American seniors, man in wheelchair play bocce ball" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2173223092/photo/african-american-seniors-man-in-wheelchair-play-bocce-ball.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=tPaKIbv0qPtDuoTXtPtGoR2zcwlRt_hKKKmq6RauY60=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> Understanding the Supports for Community Living (SCL) Waiver</h3> One of the most important resources available in Kentucky is the Supports for Community Living (SCL) waiver. This program provides services that help adults with intellectual and developmental disabilities live as independently as possible.Some of the key services available through the SCL waiver include: ✅ Help with daily living tasks (bathing, dressing, meal preparation) ✅ Caregiver support and personal assistance ✅ Residential options and housing support ✅ Day programs and job trainingFor individuals whose parents have passed away or can no longer provide care, the SCL waiver’s emergency criteria may allow them to qualify for immediate services—ensuring they don’t lose access to the care and stability they need.<h3> </h3><figure id="figure-e6gub4tckm8d98dfx"><img id="e6gub4tckm8d98dfx" src="https://media.gettyimages.com/id/1405303813/photo/portrait-of-father-and-psychomotor-intellectual-disability-daughter-sitting-on-the-sofa-at.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=7PxqfEOL6_egxBr-SCglw6Ke8HS3PiFQFpYfKeOGgYI=" alt="Portrait of father and psychomotor Intellectual disability daughter sitting on the sofa at home" title="Portrait of father and psychomotor Intellectual disability daughter sitting on the sofa at home" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1405303813/photo/portrait-of-father-and-psychomotor-intellectual-disability-daughter-sitting-on-the-sofa-at.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=7PxqfEOL6_egxBr-SCglw6Ke8HS3PiFQFpYfKeOGgYI=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> Where to Start: Next Steps for Families</h3> If you are stepping in to support a loved one after a parent’s passing, here are some first steps to consider:📌 Confirm Medicaid Eligibility &amp; Services – If they are not already receiving Medicaid waiver services, applying as soon as possible is crucial. The SCL waiver can help provide essential care.📌 Assess Housing &amp; Support Needs – Will they need in-home support, a caregiver, or a new living arrangement?📌 Connect with a Case Manager or Advocate – Navigating these systems can be complex. Working with an expert who understands self-direction and Medicaid waivers can make the process much easier.📌 Have Conversations About Their Wishes – If they are able to express their preferences, involving them in decisions about their future is important.Every family’s situation is unique, and there is no “one-size-fits-all” solution—but the key is to start early, ask for help, and take it one step at a time.<h3> </h3><figure id="figure-orkc8y2m4km8d98hbn"><img id="orkc8y2m4km8d98hbn" src="https://media.gettyimages.com/id/2130791200/photo/adult-autistic-male-with-worried-expression.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=vRaA1fa3I18cQ4YL0foWmfFDxOPy41M6JRkPQVbUQuw=" alt="Adult autistic male with worried expression" title="Adult autistic male with worried expression" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2130791200/photo/adult-autistic-male-with-worried-expression.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=vRaA1fa3I18cQ4YL0foWmfFDxOPy41M6JRkPQVbUQuw=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> You Don’t Have to Navigate This Alone</h3>If you’re trying to figure out what comes next for a loved one with a developmental disability, you don’t have to do it alone. I specialize in helping families navigate this transition—making sure your loved one gets the care, stability, and support they need.💬 <a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">Schedule a free consultation today </a>to get personalized guidance and next steps. Click here to connect with me.Let’s take the next step—together.&nbsp; <figure id="figure-jv7k2tgbtcm8d8tcot"><img id="jv7k2tgbtcm8d8tcot" src="https://cdn.durable.co/blocks/12ZLeaBzix8OgLSpUXF98opcZ1n5WGdYO1J6XuZ0eVgL8LcZ8HR7kiyyzxYDL3RE.jpg" alt="" title="" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 1/1; object-position: undefined undefined;" data-corners="default" data-aspect="1:1" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://cdn.durable.co/blocks/12ZLeaBzix8OgLSpUXF98opcZ1n5WGdYO1J6XuZ0eVgL8LcZ8HR7kiyyzxYDL3RE.jpg" data-mce-style="aspect-ratio: 1/1; object-position: undefined undefined;"></figure> &nbsp; &nbsp; &nbsp; &nbsp;

“Our Parents Are Gone—Now What?” Navigating Life After a Parent for Adults with Developmental Disabilities

<h2>How Aging Parents and Siblings Can Find Support for Their Loved One Today</h2><h3> You’re exhausted—caring for your disabled loved one while your body reminds you that you’re not 40 anymore.</h3>&nbsp;The Medicaid waiver waitlist drags on, your to-do list never ends, and the disability care system you thought would help…doesn’t.&nbsp;You’re running on fumes, but you can’t stop—because no one else will step in.&nbsp;What happens when you can’t do it anymore?&nbsp;Your parents can’t care for your sibling anymore. Now what?&nbsp;Most families don't know—there's someone who can help figure this out.&nbsp;It's not a secret, but it feels like one. Here’s how:&nbsp;<figure id="figure-8806gc56e8m77yhhzw"><img id="8806gc56e8m77yhhzw" src="https://media.gettyimages.com/id/1391247384/photo/mature-adult-female-sits-next-to-her-autistic-brother.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=VUV8cscv0z5_QQGOK1MlRVbUwQPp6Ykbw_nBcMdtzqo=" alt="Mature adult female sits next to her Autistic brother" title="Mature adult female sits next to her Autistic brother" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: undefined undefined;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1391247384/photo/mature-adult-female-sits-next-to-her-autistic-brother.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=VUV8cscv0z5_QQGOK1MlRVbUwQPp6Ykbw_nBcMdtzqo=" data-mce-style="aspect-ratio: 16/9; object-position: undefined undefined;"></figure><h2>&nbsp;💡 3 Ways to Get Support—Without Waiting on the Waiver:</h2><h3> 1. Build Natural Supports and Use Community Resources:</h3> You shouldn’t have to carry the load alone. There are resources and people who can support you: ✔️ Invite family and friends to be part of your loved one’s support team ✔️ Caregiver relief programs from your local Area Development District ✔️ Join caregiver support groups to connect with others who understand your journeyCreating a strong support network can ease your burden—and help is closer than you think. <figure id="figure-7icignlj8m77yi9h4"><img id="7icignlj8m77yi9h4" src="https://media.gettyimages.com/id/2166332466/photo/patient-knitting-lesson.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=LM1psaCaoVcUcODzg9qgx-UZ6zO-_VReY2F5rorrFDk=" alt="Patient Knitting Lesson" title="Patient Knitting Lesson" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/2166332466/photo/patient-knitting-lesson.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=LM1psaCaoVcUcODzg9qgx-UZ6zO-_VReY2F5rorrFDk=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> 2. Explore Waiver Service Options (Even If You’ve Been Denied Before):</h3> If the primary caregiver is experiencing a physical or mental health decline, your family may qualify for waiver services—even if you were denied before or are on a waitlist.&nbsp;Waiver programs may help you: ✔️ Get respite care to prevent burnout ✔️ Access in-home care services - no group home required&nbsp; ✔️ Help your loved one choose who helps them and live their best life&nbsp;Don’t assume you’re ineligible— help may be available when your situation shifts.<figure id="figure-pgrgwygrhm77yif5c"><img id="pgrgwygrhm77yif5c" src="https://media.gettyimages.com/id/639163366/photo/loving-family-daughters-with-down-syndrome-at-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=a6IfA6oN9G_HgTs4LcRsgkr1WnxJPmcx_2RnZ536qtk=" alt="Loving family, daughters with down syndrome, at home" title="Loving family, daughters with down syndrome, at home" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/639163366/photo/loving-family-daughters-with-down-syndrome-at-home.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=a6IfA6oN9G_HgTs4LcRsgkr1WnxJPmcx_2RnZ536qtk=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>&nbsp; 3. Explore Private Pay Services Without Breaking the Bank:</h3> Private pay doesn’t have to mean out of reach. Affordable options exist, such as: ✔️ Disability day centers, some offering private pay rates as low as $12 per hour ✔️ Bartering services with local caregivers or community members ✔️ Live-in caregiver arrangements, offering room and board in exchange for support ✔️ Grants, such as the Hart Supported Living Grant, which helps fund in-home supportsThere are creative ways to find help without draining your savings.<figure id="figure-wqqckn8wghm77yhpu5"><img id="wqqckn8wghm77yhpu5" src="https://media.gettyimages.com/id/1312864133/photo/autistic-man-and-caretaker.jpg?b=1&s=2048x2048&w=0&k=20&c=6f5I4g3AP8fiMwEqJJylMPQhF19W2qzuJ0GYmi_ZLyE=" alt="Autistic man and caretaker" title="Autistic man and caretaker" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionX="null" data-positionY="null" data-fullWidth="false"/></figure><h3>&nbsp; ❤️ You Deserve Help Today—Not ‘Someday’</h3>You’ve carried this weight for so long. It’s time to discover the options that can help you and your loved one today.<h3>Feeling Stuck? Need Support?&nbsp;</h3>Visit <a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">sharrisonconsulting.com</a> to explore real solutions and resources available TODAY!&nbsp;

Out of Options and Exhausted?

<h3>How Do I Plan for My Adult Child with Disabilities?</h3> Planning for an adult child with disabilities involves four key steps:<ol><li>Exploring Medicaid waivers for in-home care and support services.</li><li>Choosing a housing option, whether in-home support, shared living,&nbsp; an independent setup, a group home or other options.&nbsp;</li><li>Setting up financial protections, such as a special needs trust.</li><li>Hiring and managing caregivers for long-term stability.</li></ol> For parents and siblings of adults with disabilities, planning for the future can feel overwhelming. Whether it's housing, Medicaid waivers, caregiver support, or long-term financial security, making the right choices requires clear guidance and a roadmap.<h3>Step 1: Understanding Long-Term Care Options</h3> Every family must decide how to structure care and independence for their adult child. Key questions to consider:Should we apply for Medicaid waiver services or continue private pay support? Is in-home care the best fit, or should we explore independent living options? How do we ensure financial security with a special needs trust?<figure id="figure-ors4j3xftm6v3lbo7"><img id="ors4j3xftm6v3lbo7" src="https://media.gettyimages.com/id/1313401233/photo/adult-man-portrait-with-a-down-syndrome-photo-series.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=4s2237JQ9EuBK_vOwU3ui0YsyG1X5Jwy4KXtcv6mxhw=" alt="Adult Man Portrait with a Down Syndrome Photo Series" title="Adult Man Portrait with a Down Syndrome Photo Series" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: undefined undefined;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="undefined" data-positiony="undefined" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1313401233/photo/adult-man-portrait-with-a-down-syndrome-photo-series.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=4s2237JQ9EuBK_vOwU3ui0YsyG1X5Jwy4KXtcv6mxhw=" data-mce-style="aspect-ratio: 16/9; object-position: undefined undefined;"></figure><h3> Step 2: Exploring Medicaid &amp; Waiver Services</h3> Many families of older adults with disabilites have never used government-funded disability services, but Medicaid waivers provide key benefits for the future including:✅ Personal Care Services – Help with daily living activities ✅ Respite Care – Giving family caregivers a break ✅ In-Home Support – Hiring caregivers through Medicaid ✅ Employment &amp; Day Programs – Support for independent work and activitiesIf a Medicaid waiver isn't currently an option, there are many other programs and services that&nbsp; can support your loved one.&nbsp;<figure id="figure-8yg7xj13wm6v3lgaq"><img id="8yg7xj13wm6v3lgaq" src="https://media.gettyimages.com/id/182507376/photo/mothers-love.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=MCzwWqsWLzMWEENBtNobhGlvukz4wu0hAM690gbP3sE=" alt="Mothers love" title="Mothers love" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/182507376/photo/mothers-love.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=MCzwWqsWLzMWEENBtNobhGlvukz4wu0hAM690gbP3sE=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3>Step 3: Choosing Housing &amp; In-Home Care Options</h3> Many families consider group homes, but other living arrangements may provide more autonomy and personalized support:<ul><li>Building a Care Team – If your loved one rents or owns their home, or lives with you, you can build a care team to support them at home instead of a group home.&nbsp;</li><li>Shared Living Arrangements – You can match people with disabilities for co-housing, or offering free or reduced rent to a caregiver in exchange for support.&nbsp;</li><li>Supported Apartments – Renting or purchasing an accessible apartment with part-time paid caregiver support, and part time unpaid caregiver support.</li></ul><figure id="figure-sppap2iqtrm6v3lkil"><img id="sppap2iqtrm6v3lkil" src="https://media.gettyimages.com/id/1345489338/photo/portrait-of-a-father-and-his-daughter-with-special-needs.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=tts5x5pfqnrDVQT6xyII6gnCN77BMVWNbddC1PXE8Qk=" alt="Portrait of a father and his daughter with special needs" title="Portrait of a father and his daughter with special needs" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: center center;" data-corners="default" data-aspect="16:9" data-caption="" data-positionx="null" data-positiony="null" data-fullwidth="false" data-mce-src="https://media.gettyimages.com/id/1345489338/photo/portrait-of-a-father-and-his-daughter-with-special-needs.jpg?b=1&amp;s=2048x2048&amp;w=0&amp;k=20&amp;c=tts5x5pfqnrDVQT6xyII6gnCN77BMVWNbddC1PXE8Qk=" data-mce-style="aspect-ratio: 16/9; object-position: center center;"></figure><h3> Step 4: Financial &amp; Legal Planning</h3> A special needs trust ensures long-term financial security while protecting eligibility for government benefits. Families should also explore:Supported Decision-Making &amp; Guardianship &nbsp;– Choosing the right level of support Special Needs Trusts – Protects assets while maintaining eligibility for Medicaid and SSI.&nbsp;Social Security Disability (SSDI) &amp; Supplemental Security Income (SSI) – Maximizing benefits ABLE Accounts – Tax-free savings accounts for disability-related expenses <figure id="figure-bkown3ts0qm6v3td0d"><img id="bkown3ts0qm6v3td0d" src="https://media.gettyimages.com/id/605982350/photo/young-als-patient-with-his-mom.jpg?b=1&s=2048x2048&w=0&k=20&c=myr078dL_3Nvd6_TxBBymp0mKKPj7vfziZHD5ZxDxDY=" alt="Young ALS patient with his mom" title="Young ALS patient with his mom" class="object-cover bg-gray-100 rounded-2xl md:rounded-3xl lg:rounded-4xl" style="aspect-ratio: 16/9; object-position: undefined undefined;" data-corners="default" data-aspect="16:9" data-caption="" data-positionX="undefined" data-positionY="undefined" data-fullWidth="false"/></figure><h3>Get Expert Guidance on Options for Your Child's Future</h3> Navigating care, housing, and financial decisions doesn’t have to be overwhelming. With the right support, families can create a personalized plan that ensures a secure, fulfilling future for their loved one.<a data-mce-href="sharrisonconsulting.com" href="sharrisonconsulting.com">📅 Explore support options here.</a>

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