You Won’t Always Be Here

This is a done-with-you support program specifically designed for aging parents of adult children with developmental and intellectual disabilities—including autism, Down syndrome, cerebral palsy, and more.

Samantha acts as your dedicated mentor and partner, guiding you step-by-step through the complex process of building a sustainable, secure future for your child.

Here’s what you can expect:

Personalized Mentoring: Direct support tailored to your family’s unique situation and needs.

Streamlined Resource Access: Help connecting with the right Medicaid waivers, PDS (Participant-Directed Services), housing, and disability benefits.

Step-by-Step Guidance: Collaborative help creating a practical, manageable roadmap for long-term support—covering caregivers, housing, safety, and more.

Navigational Expertise: Clarity and support as you navigate complicated applications, systems, and paperwork.
Emotional Backup: Guidance through difficult decisions, fears, and the emotional weight of planning for your child’s future.

This program empowers you to get real progress in place—before you can no longer handle it all yourself.

This program is for aging parents of adult children with special needs, including intellectual and developmental disabilities such as autism, Down syndrome, cerebral palsy, Prader-Willi Syndrome, and others.

It’s especially designed for parents who:

Have been the primary caregiver for decades,

Feel overwhelmed and unsure where to begin with future planning,

Are worried about what happens when they can no longer provide care,

Know things need to get done but feel too exhausted or scared to tackle it alone.

If you’re ready to stop avoiding the hard stuff and start building something lasting, this program is here to support you every step of the way.

The program provides comprehensive, hands-on support for parents of adults with disabilities, including:

✅ Accessing Disability Services: Help identifying and connecting with Medicaid waivers, Participant-Directed Services (PDS), housing programs, and other key resources.

✅ Building a Care Team: Support with recruiting, hiring, and managing caregivers to ensure your child’s needs are met reliably.

✅ Future Care & Housing Guidance: Step-by-step help creating a personalized roadmap for safe, sustainable long-term care and housing.

✅ Legal & Successor Preparation: Assistance getting guardianship, benefits, and successor caregiver plans in place.

✅ Emotional & Practical Support: A collaborative partner to walk you through fears, big decisions, and every milestone along the way.

This program is designed to lighten your load, not add to it. We work at a manageable pace, breaking each step down into doable pieces so you don’t feel buried in tasks. My goal is to make your future planning sustainable and realistic—while keeping your energy and bandwidth in mind.

Most resources offer a one-time consult, a brochure, or a list of phone numbers—leaving you to figure everything out on your own.

This program is different because it’s deep, personalized, and hands-on.

I’ll work with you step-by-step, helping you understand, implement, and follow through with the right supports for your child—without judgment or overwhelm.

You’ll always know your next step, and you’ll have a trusted partner in your corner the entire way.

Yes, absolutely. Many parents feel completely stuck when they first reach out.

We’ll start wherever you are right now—whether that’s just beginning to think about future care or already knee-deep in a complicated situation.

You’ll get clear priorities, action steps, and ongoing guidance—so you never have to figure this out alone.

Every family’s needs are different. We’ll work together to create a support option that fits your situation. Payment options include:

✅ Self-pay (credit, debit, check),
✅ Special Needs Trusts,
✅ STABLE Accounts,
✅ Estate Planning Funds,
✅ Crowdfunding,
✅ The Hart Supported Living Grant.

Payment plans are available. Let’s connect to discuss the best path forward for your family.

Not at this time. Medicaid waivers have strict guidelines and typically do not cover mentoring, planning, or consultative services like this.

This program is designed to fill the gaps—offering customized support and strategy that goes beyond what the waiver provides, so you can move forward with clarity and confidence.

This program supports families caring for adults with a wide range of disabilities, including:

Autism Spectrum Disorder,
Down Syndrome,
Cerebral Palsy,
Prader-Willi Syndrome,
Fragile X, Williams Syndrome, and other genetic syndromes,
Intellectual disability (mild to profound),

Helping families with aggressive behaviors, high medical needs, or complex support needs  is one of my specialties.

Whatever your child’s needs, we’ll work together to create a sustainable, thoughtful path forward.

It’s never too early. In fact, the earlier you begin, the more options you’ll have and the less stressful it will feel. Whether you’re still in good health or beginning to feel your energy shift, it’s wise to start putting things in place now—so your child’s care is secure, stable, and sustainable.

Click the “Get Started” button or use the “Chat with Samantha” link to book a no-pressure consultation. We’ll talk through your concerns and goals, and explore how this program can help you move forward with clarity, relief, and peace of mind.

Yes! The Kentucky Supports for Community Living (SCL) Waiver provides essential services for adults with developmental disabilities—but it often comes with a long waitlist.

If you meet emergency criteria—such as caregiver death, serious illness, or imminent loss of housing—this program can help you:

✅ Understand the emergency waiver process,
✅ Gather critical documentation,
✅ Navigate applications with Kentucky Medicaid authorities,
✅ Build backup systems to support

your child in the meantime.
While the state ultimately makes final decisions, my role is to help you build the strongest possible case and make sure no detail is missed.

You’re not alone in wondering that. Nationally—and especially in Kentucky—there’s been a major gap in services for aging parents planning long-term care for their adult children with disabilities.

This program was created out of personal experience and a deep understanding of how hard it is to find real, personalized help. It’s designed to fill that gap and make sure no family has to navigate these challenges alone.

No—Samantha is not a case manager.

She’s a disability consultant with over 12 years of experience helping families navigate Kentucky’s Medicaid waiver system, hire caregivers through Participant-Directed Services (PDS), and build long-term care solutions that actually work.

She created this support system because case managers are already doing everything they can in a system that’s stretched too thin.

In Kentucky, families are facing impossible challenges:

• Long waitlists
• Confusing waiver rules
• Little to no guidance on how to actually use approved services
• Limited support when it comes to things like hiring caregivers, navigating self-direction (PDS), or planning for long-term care

Case managers play a vital role—but even the best ones can’t provide the in-depth, personalized support that many families need to feel confident and prepared.

That’s why Samantha developed a hands-on, done-with-you approach: to fill the education, advocacy, and implementation gaps families are struggling with.

This service exists because families deserve more than a system of referrals and 1-800 numbers.

You deserve answers, clarity, and a trusted partner who can help you actually move forward—without waitlists, red tape, or starting from scratch.