Choosing self-direction doesn't mean you have to make every decision alone. Family and loved ones can play an important role in supporting and improving the self-directed care experience. Here are some ways you can help and build a strong support network:

Learn together
Learn about self-directed care and share that knowledge with your family and friends. Teaching them about self-direction helps them understand and support your goals. You can find free online training on Self-Direction through the Centers for Medicare & Medicaid Services.

Coordinate care
Involve your family in coordinating your care. They can help schedule appointments, manage medications, or assist with daily activities. This practical support can help you navigate the responsibilites involved with self-direction.

Supported decision-making
Supported decision-making is an alternative to guardianship. It allows people with disabilities to make their own decisions with support. It focuses on respecting personal preferences and including people in decisions about their own lives. You can learn more from the National Resource Center on Supported Decision-Making.

Emotional support
Your family can provide emotional support throughout your self-directed care journey. Their presence, understanding, and encouragement are valuable during uncertain times or challenges.

Communicate and advocate
Family members can be powerful advocates. They can help reinforce your self-advocacy efforts so that your preferences are respected when dealing with healthcare professionals and service providers.

Representative
If you choose self-direction, you can appoint a representative to support you with employer responsibilities. This person can be anyone you choose, including a family member, as long as they meet the program's representative requirements.

Bonus: Take care of each other
Family members also need support and self-care to stay involved in self-directed care. Take breaks, find respite options, and engage in activities that promote well-being. Consider working with a Care Consultant or Community Guide to navigate these options.

By involving your family and loved ones in self-directed care, you create a supportive network that prioritizes your choices and well-being. Together, you can navigate your self-directed care journey with confidence and the knowledge that you have a strong support system by your side.

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The Role of Family and Loved Ones in Self-Directed Care