Disability Care Isn't Just About What Medicaid Waivers Offer, It's About Getting Creative With What We've Got

Oct 21, 2024By Samantha Harrison

SH

Families Who Do These 5 Things Are Getting Ahead

Waiting for a Medicaid waiver can feel like you’re stuck in neutral.

But here’s the deal: the families who are moving forward to help their loved one build a great life... aren’t just waiting around.

They’re finding creative ways to build the care they need right now, tapping into resources they didn’t even know existed.

You can do the same!

Here’s 5 things you can do  while waiting on the system to catch up.

Loving father holding and playing with his disabled son while enjoying time together outdoors.

1. Discover Hidden Gems in Your Community


There are support options right in your community that might surprise you. Local nonprofits, churches, and even small businesses often have programs that offer respite care, social activities, or educational help—sometimes without any cost! These are hidden gems that families often overlook.

Pro tip: Get in touch with your city’s disability services board or search local Facebook groups. You might find amazing resources that can lighten your load and enrich your loved one’s life.

Portrait Of Man With Down Syndrome Working In Warehouse Wearing Headset

2. Create Your Own Care Network (AKA Don’t Go It Alone!)


Let’s be honest—caregiving can feel like a 24/7 job. But you don’t have to carry the weight alone.

Families who thrive are the ones who pull in friends, family, and even neighbors to help out.

It doesn’t have to be big—sometimes just having someone to talk to or handle small tasks like transportation makes a world of difference.

Quick tip: Ask a close friend or family member to help with something specific—whether it’s attending a meeting with you or watching your loved one for an hour. Small asks can make a big impact!

Business people, group celebration and wow, success and peace sign, thumbs up or friends in team building. Happy, excited and diversity women and men in office teamwork, support or thank you portrait

3. Find a Mentor Who’s Been There


Feeling lost or overwhelmed is normal when you’re waiting for services. That’s why finding someone who’s been through it before can be a game-changer.

A mentor—someone who knows the ins and outs of self-direction, waiver systems, and caregiving—can provide you with real-world advice and support you can actually use.

If you're looking for a mentor who understands the ins and outs of self-direction, there's a service designed to help you.

With personalized support, expert advice, and practical tools like webinars, you’ll get the guidance you need to move forward with confidence.

Pro tip: Click here to learn how mentorship can help your family thrive, even when the system is slow to respond.

a very long line of yellow lines on a black background

4. Get Creative with Hiring Help


Caregiving support doesn’t always have to come with a big price tag. Some families find help by hiring creatively—like college students in special education or occupational therapy programs who are looking for part-time work.

Even a neighbor willing to pitch in for a few hours a week can take some of the pressure off.

Bonus tip: Use job boards at local colleges, community centers, churches or social media groups to find the right fit. There’s likely someone nearby who’s perfect for the role!

Having trouble finding the right caregiver? 

Couple At Home With Man With Down Syndrome And Woman Preparing Topping For Pizza In Kitchen Together

The Big Picture


Medicaid waivers are important, but they’re not the only solution.

Families who are helping their loved ones build incredible lives are the ones taking control of their situation, finding resources, building networks, and seeking guidance from mentors who’ve been in their shoes.

You don’t have to wait for the system to catch up—get creative, get support, and start moving forward today!

Learn more at https://sharrisonconsulting.com.